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夏威夷建立全州胎儿酒精谱系障碍预防综合系统面临的挑战与进展

Challenges and Progress in Building a Comprehensive Statewide System for Fetal Alcohol Spectrum Disorders Prevention in Hawai'i.

作者信息

Onoye Jane M, Thompson Mika D

机构信息

Department of Psychiatry, John A. Burns School of Medicine, University of Hawai'i at Mānoa, Honolulu, HI, USA.

The Queen's Medical Center, Honolulu, HI, USA.

出版信息

Matern Child Health J. 2017 May;21(5):1002-1009. doi: 10.1007/s10995-017-2270-7.

Abstract

Introduction Fetal Alcohol Spectrum Disorders (FASD) has been a maternal and child public health concern in Hawai'i for over the past decade. Methods A historical assessment of FASD related activities was conducted to map the challenges and progress made in building a comprehensive statewide system for FASD prevention and intervention in an island state. Results Progress has primarily been reflected in increasing the number of individuals receiving FASD education and training, as well as some initiatives in public awareness. The creation of a State FASD Coordinator position was significant in catalyzing support for FASD initiatives and extending collaborative networks with national experts/teams, community-based organizations, and other local agencies to leverage resources in a time of economic strain. Major challenges and barriers included loss of the FASD Coordinator position, reliance on external resources and lack of local capacity for training and education integration into existing practice systems, and inadequate surveillance infrastructure. Discussion Lack of funding and resources were a common factor overall, and impeded the development of a state strategic plan which was needed to guide overall efforts and policies into a more coordinated system to reduce and prevent FASDs in Hawai'i.

摘要

引言 在过去十年中,胎儿酒精谱系障碍(FASD)一直是夏威夷母婴公共卫生领域关注的问题。方法 对与FASD相关的活动进行了历史评估,以梳理在一个岛屿州建立全面的全州FASD预防和干预系统过程中所面临的挑战和取得的进展。结果 进展主要体现在接受FASD教育和培训的人数增加,以及一些提高公众意识的举措。设立州FASD协调员职位对于推动对FASD举措的支持以及扩展与国家专家/团队、社区组织和其他地方机构的合作网络以在经济紧张时期利用资源具有重要意义。主要挑战和障碍包括FASD协调员职位的缺失、对外部资源的依赖、缺乏将培训和教育融入现有实践系统的本地能力,以及监测基础设施不足。讨论 资金和资源短缺是总体上的一个共同因素,阻碍了制定州战略计划,而该计划对于将整体努力和政策引导到一个更协调的系统以减少和预防夏威夷的FASD是必要的。

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