Ornstein Katherine A, Penrod Joan, Schnur Julie B, Smith Cardinale B, Teresi Jeanne A, Garrido Melissa M, McKendrick Karen, Siu Albert L, Meier Diane E, Morrison R Sean
1 Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai , New York, New York.
2 Institute for Translational Epidemiology, Icahn School of Medicine at Mount Sinai , New York, New York.
J Palliat Med. 2017 Jul;20(7):716-721. doi: 10.1089/jpm.2016.0442. Epub 2017 Feb 10.
Although family satisfaction is recognized as a critical indicator of quality for patients with advanced cancer, it is rarely assessed as part of routine clinical care. Measurement burden may be one barrier to widespread use of family satisfaction measures.
The goal of this study was to test the ability of a new, brief 5-item measure of family satisfaction with care to accurately capture differences across hospital settings.
Using data from the Palliative Care for Cancer Patients study, a prospective study of 1979 patients and caregivers, we used multivariate regression analysis to detect significant differences across five sites.
Hospitalized patients with advanced cancer and their caregivers Methods: We used both the shortened 5-item version of the FAMCARE scale (previously developed using Item Response Theory) and the original 20-item FAMCARE to measure family satisfaction.
On the 5-item FAMCARE, sites ranged from mean scores of 5.5-6.9 out of a possible high score of 10. Family members at one care site (n = 783) were significantly (p < 0.05) less satisfied with their care than family members at four other care sites. The original 20-item measure failed to differentiate satisfaction levels between all hospital sites.
Variability in family satisfaction with advanced cancer care across hospital settings can be more sensitively detected using a brief 5-item questionnaire versus longer measures. The development of less lengthy and burdensome measures for monitoring family satisfaction, which are still valid, can facilitate routine assessments to maintain and promote high-quality care across care settings.
尽管家庭满意度被认为是晚期癌症患者护理质量的关键指标，但在常规临床护理中很少将其作为评估内容。测量负担可能是家庭满意度测量方法广泛应用的一个障碍。
本研究的目的是测试一种新的、简短的包含5个条目的家庭护理满意度测量方法能否准确反映不同医院环境之间的差异。
利用癌症患者姑息治疗研究的数据，这是一项对1979名患者及其护理人员的前瞻性研究，我们使用多元回归分析来检测五个地点之间的显著差异。
晚期癌症住院患者及其护理人员 方法：我们使用了FAMCARE量表缩短后的5个条目版本（此前使用项目反应理论开发）和原始的20个条目版本来测量家庭满意度。
在5个条目的FAMCARE量表上，各地点的平均得分在满分10分中为5.5 - 6.9分。一个护理地点（n = 783）的家庭成员对护理的满意度显著低于其他四个护理地点的家庭成员（p < 0.05）。原始的20个条目版本未能区分所有医院地点之间的满意度水平。
与较长的测量方法相比，使用简短的5个条目问卷可以更敏感地检测出不同医院环境中晚期癌症护理的家庭满意度差异。开发更简短、负担更小且仍然有效的监测家庭满意度的测量方法，可以促进常规评估，以在不同护理环境中维持和促进高质量护理。
