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[开篇文章:医疗保健以人为本:现状]

[Kick-off article: Patients first in health care: Status quo].

作者信息

Bethge Susanne, Danner Martin

机构信息

Innovationsausschusses beim Gemeinsamen Bundesausschuss (G-BA), Stabsstelle Patientenbeteiligung, Berlin, Germany.

Bundesarbeitsgemeinschaft Selbsthilfe von Menschen mit Behinderung und chronischer Erkrankung und ihren Angehörigen e.V.

出版信息

Z Evid Fortbild Qual Gesundhwes. 2017 Apr;121:54-57. doi: 10.1016/j.zefq.2017.03.002. Epub 2017 Apr 11.

DOI:10.1016/j.zefq.2017.03.002
PMID:28408192
Abstract

"Putting patients first in health care" seems to be a rhetorical statement. But is it really the case that patients always come first? And where exactly do we stand with patient involvement and patient orientation in Germany? What participation options are currently available? Is the patient involvement and patient orientation we have so far achieved sufficient? What needs to be done? These questions will be addressed in the following discussion. Patient self-help organizations, patient interest groups, patient representatives as well as the industrial and political decision-making bodies agree that the patient perspective should be more strongly integrated into health care and health care delivery decisions. The relevant information and sources of evidence, however, are yet insufficiently provided and used. Patients are experts for their own cause. There is consensus that patient participation is and must be an integral part of all levels of health care. Patient representation has made enormous progress in the last decade. This article outlines the current state of affairs of patient representation, patient involvement, their legal legitimacy and possible future scenarios. The transformation from of a paternalistically oriented health care system towards a patient-oriented system is far advanced, but much remains to be done. (As supplied by guesteditors).

摘要

“将患者置于医疗保健首位”似乎只是一句空话。但患者真的总是排在首位吗?在德国,我们在患者参与和以患者为导向方面究竟处于什么位置?目前有哪些参与选项?我们目前所实现的患者参与和以患者为导向是否足够?需要做些什么?以下讨论将探讨这些问题。患者自助组织、患者利益团体、患者代表以及行业和政治决策机构都认为,应将患者视角更有力地融入医疗保健和医疗服务决策中。然而,相关信息和证据来源的提供和使用仍不充分。患者是自身情况的专家。大家一致认为,患者参与过去是、现在也必须是各级医疗保健不可或缺的一部分。在过去十年中,患者代表工作取得了巨大进展。本文概述了患者代表、患者参与的现状、其法律合法性以及未来可能的情况。从家长式医疗保健系统向以患者为导向的系统的转变已取得很大进展,但仍有许多工作要做。(由客座编辑提供)

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