Kushalnagar Poorna, Harris Raychelle, Paludneviciene Raylene, Hoglind TraciAnn
Deaf Health Communication and Quality of Life Center, Department of Psychology, Gallaudet University, Washington, DC, United States.
Department of American Sign Language and Deaf Studies, Gallaudet University, Washington, DC, United States.
JMIR Res Protoc. 2017 Sep 13;6(9):e172. doi: 10.2196/resprot.8067.
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American's public use of health-related information. This survey is available in English and Spanish, but not in American Sign Language (ASL). Thus, the exclusion of ASL users from these national health information survey studies has led to a significant gap in knowledge of Internet usage for health information access in this underserved and understudied population.
The objectives of this study are (1) to culturally adapt and linguistically translate the HINTS items to ASL (HINTS-ASL); and (2) to gather information about deaf people's health information seeking behaviors across technology-mediated platforms.
We modified the standard procedures developed at the US National Center for Health Statistics Cognitive Survey Laboratory to culturally adapt and translate HINTS items to ASL. Cognitive interviews were conducted to assess clarity and delivery of these HINTS-ASL items. Final ASL video items were uploaded to a protected online survey website. The HINTS-ASL online survey has been administered to over 1350 deaf adults (ages 18 to 90 and up) who use ASL. Data collection is ongoing and includes deaf adult signers across the United States.
Some items from HINTS item bank required cultural adaptation for use with deaf people who use accessible services or technology. A separate item bank for deaf-related experiences was created, reflecting deaf-specific technology such as sharing health-related ASL videos through social network sites and using video remote interpreting services in health settings. After data collection is complete, we will conduct a series of analyses on deaf people's health information seeking behaviors across technology-mediated platforms.
HINTS-ASL is an accessible health information national trends survey, which includes a culturally appropriate set of items that are relevant to the experiences of deaf people who use ASL. The final HINTS-ASL product will be available for public use upon completion of this study.
健康信息国家趋势调查（HINTS）收集有关美国人对健康相关信息的公众使用情况的全国代表性数据。该调查有英文和西班牙文版本，但没有美国手语（ASL）版本。因此，将使用美国手语的人群排除在这些全国健康信息调查研究之外，导致在这个服务不足且研究较少的人群中，对于通过互联网获取健康信息的使用情况的了解存在重大差距。
本研究的目的是（1）对HINTS项目进行文化调适并将其语言翻译成美国手语（HINTS-ASL）；（2）收集有关聋人在技术介导平台上的健康信息寻求行为的信息。
我们修改了美国国家卫生统计中心认知调查实验室制定的标准程序，以对HINTS项目进行文化调适并翻译成美国手语。进行了认知访谈，以评估这些HINTS-ASL项目的清晰度和表达方式。最终的美国手语视频项目被上传到一个受保护的在线调查网站。HINTS-ASL在线调查已针对1350多名使用美国手语的聋人成年人（年龄在18岁至90岁及以上）进行。数据收集正在进行中，包括美国各地的成年聋人手语使用者。
HINTS项目库中的一些项目需要进行文化调适，以便与使用无障碍服务或技术的聋人一起使用。创建了一个单独的与聋人相关经历的项目库，反映了特定于聋人的技术，如通过社交网站分享与健康相关的美国手语视频，以及在健康环境中使用视频远程口译服务。数据收集完成后，我们将对聋人在技术介导平台上的健康信息寻求行为进行一系列分析。
HINTS-ASL是一项可获取的健康信息国家趋势调查，其中包括一组与使用美国手语的聋人的经历相关的文化上合适的项目。本研究完成后，最终的HINTS-ASL产品将可供公众使用。
