Hasardzhiev Stanimir, Mendão Luís, Nolte Wolfram, Aben Bert, Kadenbach Karin
Group of Activists on Treatments (GAT), Lisbon, Portugal.
Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN-Europe).
J Comorb. 2016 Feb 17;6(1):28-32. doi: 10.15256/joc.2016.6.75. eCollection 2016.
The patient's experience of their own healthcare is an important aspect of care quality that has been shown to improve clinical and other outcomes. Very little is currently known about patient experience in the management of multimorbidity, although preliminary evidence suggests that it may be poor. Individuals with multimorbidity report better experiences of care when they are knowledgeable and involved in the decision-making, when their care is well coordinated, and communication is good. A greater focus on disease prevention, stronger collaboration between health and social care services, and the provision of more integrated care for people with mental and physical health problems would also help to improve the patient experience. Advocacy groups can amplify the patient voice and improve access to care, as well as provide information and support to patients and their families. Patients have an important role in preventing multimorbidity and improving its management, and should be involved in the development of health policies and the delivery of healthcare services. Inequalities in access to quality healthcare must also be addressed.
患者自身的医疗保健体验是护理质量的一个重要方面，已证明其能改善临床及其他结果。目前对于多重疾病管理中的患者体验知之甚少，尽管初步证据表明情况可能不佳。患有多重疾病的个体在具备知识并参与决策、护理得到良好协调且沟通顺畅时，会报告更好的护理体验。更加注重疾病预防、加强健康与社会护理服务之间的协作，以及为患有精神和身体健康问题的人提供更综合的护理，也将有助于改善患者体验。倡导团体可以放大患者声音、改善就医机会，同时为患者及其家人提供信息和支持。患者在预防多重疾病及其管理方面发挥着重要作用，应参与健康政策的制定和医疗服务的提供。获得优质医疗保健方面的不平等现象也必须得到解决。
