Laboratoire de Psychopathologie et Processus de Santé (EA 4057), Institut de Psychologie, Université Paris Descartes, Sorbonne Paris Cité, 71, avenue Edouard Vaillant, 92100, Boulogne-Billancourt, France.
Laboratoire de Recherche sur la Famille d'Enfant présentant un Trouble du Spectre de l'Autisme, Département de psychologie, Université du Québec à Montréal, Montréal, QC, Canada.
Qual Life Res. 2018 Apr;27(4):955-967. doi: 10.1007/s11136-017-1757-4. Epub 2017 Dec 4.
This study aimed to investigate the quality of life of parents of a child with autism spectrum disorder in Quebec.
Seventy-seven participants completed a questionnaire with socio-biographic information and five self-assessed scales, to measure perceived stress, social support and control, coping strategies, and quality of life.
Perception of their child's autonomy level, of the severity of the disorder, of the family's income, as well as changes in their professional or familial organization influenced parents' quality of life. Perceiving their situation as a threat predicted poor quality of life, whereas satisfaction of social support predicted good quality of life. In addition, parents who used problem solving and support-seeking coping strategies had a better relationship with their child, whereas those who used more emotion-centered coping strategies struggled. Lastly, parents who felt they had the power to contribute to their child's development were more satisfied and less disturbed.
Beyond the parents' actual situation, our results underscore the importance of paying attention to their own perception of the situation in order to provide them with appropriate support.
本研究旨在调查魁北克自闭症谱系障碍儿童父母的生活质量。
77 名参与者完成了一份包含社会生物学信息和五个自我评估量表的问卷，以衡量感知压力、社会支持和控制、应对策略以及生活质量。
父母对孩子自主性水平、疾病严重程度、家庭收入以及职业或家庭组织变化的看法影响了他们的生活质量。感知到自己的处境受到威胁预示着生活质量较差，而社会支持的满足则预示着生活质量较好。此外，使用解决问题和寻求支持的应对策略的父母与孩子的关系更好，而那些更多地使用以情绪为中心的应对策略的父母则更困难。最后，父母认为自己有能力促进孩子的发展，他们会更加满意，困扰也会更少。
除了父母的实际情况之外，我们的研究结果强调了关注他们对自身处境的看法的重要性，以便为他们提供适当的支持。
