Cappe Emilie, Bolduc Mélanie, Rougé Marie-Caroline, Saiag Marie-Claude, Delorme Richard
Laboratoire de Psychopathologie et Processus de Santé (LPPS, EA 4057), Institut de Psychologie, Université Paris Descartes - Sorbonne Paris Cité, 71 avenue Edouard Vaillant, 92100, Boulogne-Billancourt, France.
Laboratoire de Recherche sur les Familles d'Enfants présentant un Trouble du Spectre de l'Autisme, Département de Psychologie, Université du Québec à Montréal, 100 rue Sherbrooke Ouest, Montreal, QC, H2X 3P2, Canada.
Qual Life Res. 2017 May;26(5):1283-1294. doi: 10.1007/s11136-016-1446-8. Epub 2016 Oct 31.
This study investigated quality of life and adjustment mechanisms in parents of children with Attention-Deficit/Hyperactivity Disorder (ADHD).
Ninety parents of children with ADHD completed a sociodemographic questionnaire and self-assessment scales to measure their perceived stress, social support, sense of control, coping strategies and quality of life.
ADHD in children negatively affected parents' quality of life, especially their psychological well-being and personal fulfillment. Family and couple relationships, as well as daily life activities, were also affected. The severity of the disorder, perceiving the situation as a threat or a loss, feeling guilty and holding on to irrational beliefs were related to emotion-focused coping strategies and to a poorer quality of life. Furthermore, hyperactivity index and stress ratings relative to perceiving the situation as a threat or a loss, and adopting emotion-focused coping strategies, predicted poorer quality of life. In contrast, perceiving the situation as challenging was related to a greater sense of control and personal fulfillment. Moreover, perceiving the situation as challenging and adopting problem-focused coping strategies predicted better quality of life.
The findings highlight the negative effects of ADHD on parent psychological adjustment and underline the need to recommend training programs that improve parenting skills, parents' perceptions concerning their child's behavior disorder and parental functioning.
本研究调查了注意缺陷多动障碍(ADHD)患儿父母的生活质量及调节机制。
90名ADHD患儿的父母完成了一份社会人口统计学问卷和自我评估量表,以测量他们感知到的压力、社会支持、控制感、应对策略和生活质量。
儿童ADHD对父母的生活质量产生负面影响,尤其是他们的心理健康和个人成就感。家庭和夫妻关系以及日常生活活动也受到影响。疾病的严重程度、将情况视为威胁或损失、感到内疚以及持有不合理信念与以情绪为中心的应对策略和较差的生活质量有关。此外,多动指数以及相对于将情况视为威胁或损失的压力评分和采用以情绪为中心的应对策略,预示着较差的生活质量。相比之下,将情况视为具有挑战性与更强的控制感和个人成就感有关。此外,将情况视为具有挑战性并采用以问题为中心的应对策略预示着更好的生活质量。
研究结果突出了ADHD对父母心理调节的负面影响,并强调需要推荐改善育儿技能、父母对其孩子行为障碍的认知以及父母功能的培训项目。