Partanen E, Lemetti T, Haavisto E
Department of Nursing Science, University of Turku, Turku, Finland.
Helsinki University Hospital, Helsinki, Finland.
Eur J Cancer Care (Engl). 2018 Mar;27(2):e12821. doi: 10.1111/ecc.12821. Epub 2018 Jan 16.
The purpose of the review was to describe what kind of research has been conducted concerning relatives' participation in the care of cancer patients in hospital and how relatives have participated in the care. Data (n = 9) were identified through a manual search and by searching the electronic databases (n = 8) Cinahl, PubMed and Cochrane Library and analysed with deductive content analysis. According to the review, participation in the concrete care appeared as taking care of comprehensive care and the quality of care, helping with daily activities and helping the healthcare professionals. Emotional support appeared as protecting, supporting and visiting the patient and discussing with the patient. Participation in decision-making appeared as acting as an advocate for the patient, participating in the discussion concerning the decision-making and participating in the discussion concerning the decisions of end of life. According to the review, research concerning this topic seems to be rare. While hospital periods are shortening and homecare is increasing, the role of relatives as a supporter of the cancer patient is becoming even stronger. In the future, more research should be conducted how the patients experience participation and what are their wishes.
该综述的目的是描述关于亲属参与癌症患者住院护理的研究类型，以及亲属如何参与护理。通过手工检索和检索电子数据库（8个，即护理学与健康领域数据库、医学期刊数据库和考科蓝图书馆）确定了9项数据，并采用演绎性内容分析法进行分析。根据该综述，亲属在具体护理中的参与表现为提供全面护理和保证护理质量、协助日常活动以及帮助医护人员。情感支持表现为保护、支持和探视患者以及与患者进行沟通。参与决策表现为为患者代言、参与有关决策的讨论以及参与有关临终决策的讨论。根据该综述，关于这一主题的研究似乎很少。随着住院时间缩短和家庭护理增加，亲属作为癌症患者支持者的作用变得更加重要。未来，应开展更多研究，了解患者如何体验亲属的参与以及他们的愿望是什么。
