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信任与社区参与研究的道德行为

Trust and the Ethical Conduct of Community-Engaged Research.

作者信息

Khodyakov Dmitry, Mikesell Lisa, Bromley Elizabeth

机构信息

The RAND Corporation, 1776 Main Street, PO Box 2138, Santa Monica, CA 90407-2138.

Department of Communication, Institute for Health, Health Care Policy and Aging Research, Rutgers University, 4 Huntington Street, New Brunswick, NJ 08901-1071,

出版信息

Eur J Pers Cent Healthc. 2017;5(4):522-526. doi: 10.5750/ejpch.v5i4.1263.

Abstract

Community-engaged research (CEnR), which emphasizes equal participation of academic and community partners in research, seeks to improve public trust in science. Unfortunately, there is a dearth of rigorous empirical research on trust as a core component of ethical conduct of CEnR. Drawing on data collected from a project on the ethics of CEnR, this commentary discusses benefits and risks of trust and uses the concept of embeddedness to explain how public trust in science may be increased. We argue that in developing and maintaining trust, partners must balance scientific rigor with community relevance and cultural appropriateness of research. They must strike a balance between working with the same limited pool of trusted partners, which can speed research but slow wider acceptance of science, and extending their trust to new partners, which can broaden acceptance of science but slow research. Practitioners may facilitate the development of trust in science by gradually expanding the pool of partners they choose their collaborators from.

摘要

社区参与式研究(CEnR)强调学术伙伴和社区伙伴在研究中的平等参与,旨在提高公众对科学的信任。不幸的是,关于信任作为CEnR道德行为核心组成部分的严格实证研究匮乏。基于从一个关于CEnR伦理的项目收集的数据,本评论讨论了信任的益处和风险,并使用嵌入性概念来解释如何提高公众对科学的信任。我们认为,在建立和维护信任的过程中,伙伴们必须在科学严谨性与研究的社区相关性和文化适宜性之间取得平衡。他们必须在与同一批有限的受信任伙伴合作(这可以加快研究速度,但会减缓科学的广泛接受度)和将信任扩展到新伙伴(这可以扩大科学的接受度,但会减缓研究速度)之间找到平衡。从业者可以通过逐步扩大其选择合作者的伙伴群体来促进对科学信任的发展。

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