Beck Eduard J, Shields J Mark, Tanna Gaurang, Henning Gerrit, de Vega Ian, Andrews Gail, Boucher Philippe, Benting Lionel, Garcia-Calleja Jesus Maria, Cutler John, Ewing Whitney, Kijsanayotin Boonchai, Kujinga Tapiwanashe, Mahy Mary, Makofane Keletso, Marsh Kim, Nacheeva Chujit, Rangana Noma, Vega Mary Felissa Reyes, Sabin Keith, Varetska Olga, Macharia Wanyee Steven, Watiti Stephen, Williams Brian, Zhao Jinkou, Nunez Cesar, Ghys Peter, Low-Beer Daniel
a LAC RST , UNAIDS , Georgetown , Guyana.
b Health Informatics Consultant , Verona , WI , USA.
Glob Health Action. 2018;11(1):1440782. doi: 10.1080/16549716.2018.1440782.
Many resource-limited countries are scaling up health services and health-information systems (HISs). The HIV Cascade framework aims to link treatment services and programs to improve outcomes and impact. It has been adapted to HIV prevention services, other infectious and non-communicable diseases, and programs for specific populations. Where successful, it links the use of health services by individuals across different disease categories, time and space. This allows for the development of longitudinal health records for individuals and de-identified individual level information is used to monitor and evaluate the use, cost, outcome and impact of health services. Contemporary digital technology enables countries to develop and implement integrated HIS to support person centred services, a major aim of the Sustainable Development Goals. The key to link the diverse sources of information together is a national health identifier (NHID). In a country with robust civil protections, this should be given at birth, be unique to the individual, linked to vital registration services and recorded every time that an individual uses health services anywhere in the country: it is more than just a number as it is part of a wider system. Many countries would benefit from practical guidance on developing and implementing NHIDs. Organizations such as ASTM and ISO, describe the technical requirements for the NHID system, but few countries have received little practical guidance. A WHO/UNAIDS stake-holders workshop was held in Geneva, Switzerland in July 2016, to provide a 'road map' for countries and included policy-makers, information and healthcare professionals, and members of civil society. As part of any NHID system, countries need to strengthen and secure the protection of personal health information. While often the technology is available, the solution is not just technical. It requires political will and collaboration among all stakeholders to be successful.
许多资源有限的国家正在扩大卫生服务和卫生信息系统(HISs)。艾滋病毒级联框架旨在将治疗服务和项目联系起来,以改善结果和影响。它已被应用于艾滋病毒预防服务、其他传染病和非传染病以及针对特定人群的项目。在取得成功的地方,它将不同疾病类别、时间和空间的个人对卫生服务的使用联系起来。这使得能够为个人建立纵向健康记录,并使用去识别化的个人层面信息来监测和评估卫生服务的使用、成本、结果和影响。当代数字技术使各国能够开发和实施综合卫生信息系统,以支持以人为本的服务,这是可持续发展目标的一个主要目标。将各种信息来源联系在一起的关键是国家健康标识符(NHID)。在一个有强大公民保护的国家里,这一标识符应在出生时赋予,对个人是唯一的,与生命登记服务相联系,并在个人在该国任何地方使用卫生服务时都进行记录:它不仅仅是一个数字,因为它是一个更广泛系统的一部分。许多国家将从关于开发和实施国家健康标识符的实用指南中受益。诸如美国材料与试验协会(ASTM)和国际标准化组织(ISO)等组织描述了国家健康标识符系统的技术要求,但很少有国家得到过实用指南。2016年7月在瑞士日内瓦举行了一次世界卫生组织/联合国艾滋病规划署利益攸关方研讨会,为各国提供一份“路线图”,与会者包括政策制定者、信息和医疗专业人员以及民间社会成员。作为任何国家健康标识符系统的一部分,各国需要加强并确保对个人健康信息的保护。虽然技术往往是现成的,但解决方案不仅仅是技术性的。它需要政治意愿以及所有利益攸关方之间的合作才能取得成功。