Hospital Universitario Simon Bolivar, Clínica Infantil Colsubsidio, Facultad De Medicina, Post Grado Reumatologia Pediatrica, Universidad El Bosque, Carrera 7, Bogota, 163-36, Colombia.
Hospital Universitario 12 de Octubre, Unidad de Reumatología Pediátrica, Madrid, Spain.
Rheumatol Int. 2018 Apr;38(Suppl 1):107-113. doi: 10.1007/s00296-018-3941-4. Epub 2018 Apr 7.
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Colombian Spanish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, and construct validity (convergent and discriminant validity). A total of 22 JIA patients (9.1% systemic, 27.3% RF-negative polyarthritis, 36.4% enthesitis-related arthritis, 27.2% other categories) were enrolled in the paediatric centre of Bogota. All JAMAR components revealed good psychometric performances. In conclusion, the Colombian Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
《青少年关节炎多维评估报告》(JAMAR)是一种新的家长/患者报告的结局测量工具,能够全面评估儿童青少年特发性关节炎(JIA)患者的疾病状况。我们报告了家长版和患者版 JAMAR 在哥伦比亚西班牙语中的跨文化适应性和验证结果。我们在 10 名 JIA 父母和患者中测试了问卷的阅读理解能力。每个参与中心被要求在 100 名连续 JIA 患者或在 6 个月内看到的所有连续患者中收集人口统计学、临床数据和 JAMAR,并向 100 名健康儿童及其父母施测 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题:三个李克特假设、地板/天花板效应、内部一致性、克朗巴赫的阿尔法、量表间相关性以及结构有效性(收敛和区分有效性)。共有 22 名 JIA 患者(9.1%全身性,27.3% RF 阴性多关节炎,36.4%附着点相关关节炎,27.2%其他类别)被纳入波哥大儿科中心。所有 JAMAR 组成部分均显示出良好的心理计量学性能。总之,哥伦比亚西班牙语版的 JAMAR 是评估 JIA 儿童的有效工具,适用于常规临床实践和临床研究。