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伦理收养:痴呆症技术发展的新要求。

Ethical adoption: A new imperative in the development of technology for dementia.

机构信息

Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, Canada; BC Children's and Women's Hospital and Health Centres, Vancouver, British Columbia, Canada.

School of Computing, Faculty of Computing, Engineering and the Built Environment, Ulster University, Jordanstown, Northern Ireland, UK.

出版信息

Alzheimers Dement. 2018 Sep;14(9):1104-1113. doi: 10.1016/j.jalz.2018.04.012. Epub 2018 Jun 21.

Abstract

INTRODUCTION

Technology interventions are showing promise to assist persons with dementia and their carers. However, low adoption rates for these technologies and ethical considerations have impeded the realization of their full potential.

METHODS

Building on recent evidence and an iterative framework development process, we propose the concept of "ethical adoption": the deep integration of ethical principles into the design, development, deployment, and usage of technology.

RESULTS

Ethical adoption is founded on five pillars, supported by empirical evidence: (1) inclusive participatory design; (2) emotional alignment; (3) adoption modelling; (4) ethical standards assessment; and (5) education and training. To close the gap between adoption research, ethics and practice, we propose a set of 18 practical recommendations based on these ethical adoption pillars.

DISCUSSION

Through the implementation of these recommendations, researchers and technology developers alike will benefit from evidence-informed guidance to ensure their solution is adopted in a way that maximizes the benefits to people with dementia and their carers while minimizing possible harm.

摘要

简介

技术干预措施有望为痴呆症患者及其护理人员提供帮助。然而,这些技术的采用率较低,以及伦理方面的考虑因素,阻碍了它们充分发挥潜力。

方法

基于最近的证据和迭代框架开发过程,我们提出了“伦理采用”的概念:将伦理原则深度融入技术的设计、开发、部署和使用中。

结果

伦理采用建立在五个支柱之上,有实证证据支持:(1)包容性参与式设计;(2)情感协调;(3)采用建模;(4)伦理标准评估;以及(5)教育和培训。为了弥合采用研究、伦理和实践之间的差距,我们基于这些伦理采用支柱提出了一整套 18 条实用建议。

讨论

通过实施这些建议,研究人员和技术开发者都将受益于循证指导,以确保他们的解决方案以最大化造福痴呆症患者及其护理人员、同时最小化潜在危害的方式被采用。

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