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日常生活中的照料与功能残疾——巴西生物伦理、法律与社会问题研究(ELSI-Brazil)

Care and functional disabilities in daily activities - ELSI-Brazil.

作者信息

Giacomin Karla Cristina, Duarte Yeda Aparecida Oliveira, Camarano Ana Amélia, Nunes Daniella Pires, Fernandes Daniele

机构信息

Secretaria Municipal de Saúde. Diretoria de Assistência. Belo Horizonte, MG, Brasil.

Fundação Oswaldo Cruz. Instituto René Rachou. Núcleo de Estudos em Saúde Pública e Envelhecimento. Belo Horizonte, MG, Brasil.

出版信息

Rev Saude Publica. 2018 Oct 25;52Suppl 2(Suppl 2):9s. doi: 10.11606/S1518-8787.2018052000650.

Abstract

OBJECTIVE

To investigate the prevalence of demand and provision of care for the Brazilian population with functional disabilities in activities of daily living.

METHODS

This is a quantitative and descriptive study using baseline data from ELSI-Brazil (Brazilian Longitudinal Study of Aging), a cohort study with a representative sample of the Brazilian population aged 50 years or older (n = 9,412). We considered the demand for care from the self-report of having some difficulty to perform at least one activity of daily life (eating, bathing, going to the toilet, dressing, moving in a room [ambulation], and transferring from chair [transfer]). Care supply was measured by having some help to perform the activity of daily living.

RESULTS

Approximately a quarter of the individuals evaluated (23.2%) reported difficulty in at least one activity of daily living, especially regarding transfer and dressing. Age, schooling, and number of chronic diseases were significantly associated with the difficulty in activities of daily living. Among those who reported difficulty, 35.1% received help of others and 11.8% did not receive (lack of care). The activities with greater lack of care were bathing (13.3%) and transfer (11.7%), which reveals an undignified survival condition. Care remains a family (94.1%) and female (72.1%) issue; despite the important changes that have taken place in society, there is still a lack of care policies. Of the total caregivers, 25.8% reported stopping working or studying to perform this role and only 9.2% were paid (hired ones or family members).

CONCLUSIONS

The ELSI-Brazil results reveal the expressive care demand of the Brazilian population aged 50 years or older with functional disabilities on activities of daily living and the lack of care policies aimed at this public.

摘要

目的

调查巴西功能残疾人群在日常生活活动中护理需求及供给情况。

方法

这是一项定量描述性研究,使用了巴西老年纵向研究(ELSI - Brazil)的基线数据,该队列研究对巴西50岁及以上具有代表性的人群样本(n = 9412)进行了调查。我们根据自我报告中在至少一项日常生活活动(进食、洗澡、上厕所、穿衣、在房间内移动[行走]以及从椅子上转移[转移])方面存在困难来考量护理需求。护理供给通过在进行日常生活活动时是否得到一些帮助来衡量。

结果

大约四分之一接受评估的个体(23.2%)报告在至少一项日常生活活动方面存在困难,尤其是在转移和穿衣方面。年龄、受教育程度和慢性病数量与日常生活活动困难显著相关。在报告有困难的人群中,35.1%得到了他人帮助,11.8%未得到帮助(护理缺失)。护理缺失较多的活动是洗澡(13.3%)和转移(11.7%),这揭示了一种不体面的生存状况。护理仍然是家庭(94.1%)和女性(72.1%)面临的问题;尽管社会发生了重大变化,但仍然缺乏护理政策。在所有护理人员中,25.8%报告为履行这一职责而停止工作或学习,只有9.2%获得报酬(受雇人员或家庭成员)。

结论

巴西老年纵向研究的结果揭示了巴西50岁及以上功能残疾人群在日常生活活动方面对护理的巨大需求以及针对这一群体的护理政策缺失。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fe55/6254988/0af78ec390cf/0034-8910-rsp-S1518-52-s2-87872018052000650-gf01.jpg

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