Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland.
Gerontologist. 2019 Sep 17;59(5):845-855. doi: 10.1093/geront/gny127.
Meeting individual preferences for long-term services and supports (LTSS) is a policy priority that has implications for quality of care. Evidence regarding preferences is sparse. In addition, little is known regarding whether preferences and care arrangements match for those receiving care, and implications for quality of life.
A random sample (n = 1,783 in 2012) of National Health and Aging Trends Study participants were asked the best care option for someone 80+ who needs help with personal care and mobility. Analyses examine variations in care preferences, the relationship of preferences to care arrangements, and the association of matched preference and care arrangements to quality of life indicators.
Care preferences vary by demographics. Equal proportions (3 in 10) of older adults chose assisted living or continuing care retirement communities (CCRC), care in own home with family help, and care in own home with paid help, as the best options. Persons in assisted living/CCRC settings were significantly more likely to choose this option as best. Only 1 in 3 older persons receiving care are in arrangements that match preferences. No association with quality of life indicators was found.
Aging in place remains the care preference of a majority, but close to one-third chose assisted living/CCRC, suggesting preferences are evolving. Aligning care preferences and arrangements is a policy goal, but many do not achieve a match and there remain gaps in understanding trajectories in preferences and care arrangements and implications for quality of life.
满足个人对长期服务和支持(LTSS)的偏好是一项政策重点,这对护理质量有影响。关于偏好的证据很少。此外,对于接受护理的人,偏好和护理安排是否匹配以及对生活质量的影响知之甚少。
一项随机抽样(2012 年 n=1783)的国家健康与老龄化趋势研究参与者被问及,对于需要个人护理和行动帮助的 80 岁以上的人来说,最好的护理选择是什么。分析考察了护理偏好的变化,偏好与护理安排的关系,以及匹配的偏好和护理安排与生活质量指标的关联。
护理偏好因人口统计学而异。同等比例(每 10 人中有 3 人)的老年人选择辅助生活或持续护理退休社区(CCRC)、家庭帮助下的自有住房护理和付费帮助下的自有住房护理作为最佳选择。住在辅助生活/CCRC 环境中的人更有可能选择这种选择作为最佳选择。只有 1/3 的接受护理的老年人的护理安排与偏好相匹配。与生活质量指标没有关联。
就地养老仍然是大多数老年人的护理偏好,但接近三分之一的人选择了辅助生活/CCRC,这表明偏好正在发生变化。使护理偏好和安排保持一致是一个政策目标,但许多人无法实现匹配,对于偏好和护理安排的轨迹以及对生活质量的影响仍然存在差距。