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比较智力和发育障碍(IDD)儿童和青少年父母在分段式和社区式康复服务中的育儿压力:一项横断面调查。

Comparative parenting stress measures between segmental and community-based rehabilitation services in parents of children and adolescents with intellectual and developmental disabilities (IDD): A cross-sectional survey.

机构信息

Sports Movement Artificial-Intelligence Robotics Technology (SMART) Institute, Department of Physical Therapy, Yonsei University, Wonju, Korea.

Department of Physical Therapy, Yonsei University, Wonju, Korea.

出版信息

Technol Health Care. 2021;29(S1):85-89. doi: 10.3233/THC-218009.

Abstract

BACKGROUND

There is a dearth of information on the effects of different types (Segmental rehabilitation service (SRS) vs Community-based rehabilitation service (CRS)) on the parenting stress and family quality of life in parents of children who have individuals with intellectual and developmental disabilities (IDD).

OBJECTIVE

This paper is to compare the effects of SRS and CRS on parenting stress and family quality of life in parents of individuals with IDD.

METHODS

A cross-sectional design was used to examine parenting stress and family quality life in cohorts of 120 fathers and mothers of children with IDD who had received either SRS or CRS participated in the survey. The outcome measures included the modified Parenting Stress Index (PSI) and the modified Beach Center Family Quality of Life Scale (mBCFQLS). The Mann-Whitney U test was performed at P< 0.05.

RESULTS

A significant difference was observed in social stress in PSI between the SRS and CRS groups (P= 0.03). The child rearing, emotional well-being, and physical and material well-being variables in mBCFQLS were different between the SRS and CRS groups (P< 0.05), indicating superior benefits from CRS than SRS.

CONCLUSIONS

These findings provide important information and about parenting stress and family quality of life in children with IDD, for developing effective rehabilitation programs and services for these parents.

摘要

背景

关于不同类型(分段康复服务(SRS)与社区康复服务(CRS))对有智力和发育障碍(IDD)儿童的父母的育儿压力和家庭生活质量的影响,信息匮乏。

目的

本研究旨在比较 SRS 和 CRS 对有 IDD 儿童的父母的育儿压力和家庭生活质量的影响。

方法

采用横断面设计,对接受 SRS 或 CRS 的 120 名 IDD 儿童的父母进行育儿压力和家庭生活质量调查。结果测量包括改良父母压力指数(PSI)和改良海滩中心家庭生活质量量表(mBCFQLS)。采用 Mann-Whitney U 检验,P<0.05 为差异有统计学意义。

结果

PSI 中的社会压力在 SRS 和 CRS 组之间存在显著差异(P=0.03)。mBCFQLS 中的育儿、情绪健康、生理和物质健康变量在 SRS 和 CRS 组之间存在差异(P<0.05),表明 CRS 比 SRS 具有更好的效益。

结论

这些发现为有 IDD 儿童的父母的育儿压力和家庭生活质量提供了重要信息,为这些父母制定有效的康复计划和服务提供了依据。

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Parenting stress and children with cerebral palsy: a European cross-sectional survey.养育压力与脑性瘫痪儿童:一项欧洲横断面调查。
Dev Med Child Neurol. 2011 Sep;53(9):815-821. doi: 10.1111/j.1469-8749.2011.04014.x. Epub 2011 Jun 27.

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