Centre for Observational Research and Data Sciences, Bristol-Myers Squibb, Uxbridge, UK.
Bristol-Myers Squibb, Uxbridge, UK.
BMC Med. 2019 Jan 16;17(1):11. doi: 10.1186/s12916-018-1247-8.
Understanding the patient perspective is fundamental to delivering patient-centred care. In most healthcare systems, however, patient-reported outcomes are not regularly collected or recorded as part of routine clinical care, despite evidence that doing so can have tangible clinical benefit. In the absence of the routine collection of these data, research is beginning to turn to social media as a novel means to capture the patient voice. Publicly available social media data can now be analysed with relative ease, bypassing many logistical hurdles associated with traditional approaches and allowing for accelerated and cost-effective data collection. Existing work has shown these data can offer credible insight into the patient experience, although more work is needed to understand limitations with respect to patient representativeness and nuances of captured experience. Nevertheless, linking social media to electronic medical records offers a significant opportunity for patient views to be systematically collected for health services research and ultimately to improve patient care.
了解患者视角对于提供以患者为中心的医疗服务至关重要。然而，在大多数医疗保健系统中，尽管有证据表明这样做可以带来切实的临床益处，但患者报告的结果并未作为常规临床护理的一部分定期收集或记录。在没有常规收集这些数据的情况下，研究开始将社交媒体作为一种新颖的手段来捕捉患者的声音。现在，公共可用的社交媒体数据可以相对轻松地进行分析，绕过了传统方法相关的许多后勤障碍，并允许加速和具有成本效益的数据收集。现有研究表明，这些数据可以为患者体验提供可信的见解，尽管需要做更多的工作来了解与患者代表性和所捕获体验的细微差别相关的限制。然而，将社交媒体与电子病历联系起来为系统地收集患者意见以进行卫生服务研究并最终改善患者护理提供了重要机会。
