School of Nursing, Faculty of Health Sciences.
Children's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada.
Clin J Pain. 2019 May;35(5):443-450. doi: 10.1097/AJP.0000000000000693.
Adolescents are heavy users of social media as a venue to share experience and obtain information. Adolescents with chronic pain may be no different. Given that adolescents with chronic pain report feelings of social isolation, of being different, and lack peer understanding, social media may help them obtain social support. We conducted a scoping review of YouTube to identify how adolescents with chronic pain use this platform to connect with other adolescents.
The terms "youth with chronic pain" and "teens with chronic pain" were entered into the YouTube search bar to locate videos. Videos in English, targeted at and including an adolescent with chronic pain were included. Videos were screened for eligibility until 20 consecutive videos listed on the main page were excluded. For each included video the first 5 related videos suggested by YouTube in the sidebar were also screened for eligibility.
This selection process resulted in 18 included videos, with a total of 936 viewer comments. Recurring comment themes were identified using qualitative content analysis. Video content mainly covered multidisciplinary treatment options, alternative treatments, and impact of pain on daily life. Although a variety of treatment options were discussed, details of treatment were lacking. Comments reflected the overarching message "you are not alone!" and mainly focused on providing and receiving support, sharing suffering, and revealing the impact of pain on relationships and daily life.
Despite potential challenges associated with social media, YouTube may be a promising platform for provision of social support for adolescents with chronic pain.
青少年是社交媒体的重度使用者，他们在社交媒体上分享经验并获取信息。患有慢性疼痛的青少年可能也不例外。鉴于患有慢性疼痛的青少年报告说他们感到社交孤立、与众不同且缺乏同伴理解，社交媒体可能会帮助他们获得社会支持。我们对 YouTube 进行了范围界定审查，以确定患有慢性疼痛的青少年如何利用该平台与其他青少年建立联系。
在 YouTube 搜索栏中输入“青少年慢性疼痛”和“青少年慢性疼痛”等术语，以定位视频。包含且针对患有慢性疼痛的青少年的英语视频被纳入研究范围。对视频进行筛选，以确定其是否符合入选标准，直到主页面上列出的连续 20 个视频被排除在外。对于每个纳入的视频，还会对 YouTube 侧边栏中建议的前 5 个相关视频进行筛选，以确定其是否符合入选标准。
这一选择过程产生了 18 个纳入的视频，共有 936 条观众评论。使用定性内容分析方法确定了反复出现的评论主题。视频内容主要涵盖多学科治疗选择、替代治疗方法以及疼痛对日常生活的影响。虽然讨论了各种治疗选择，但缺乏治疗细节。评论反映了一个总体信息，即“你并不孤单！”，主要集中在提供和接受支持、分享痛苦以及揭示疼痛对人际关系和日常生活的影响。
尽管社交媒体可能存在一些挑战，但 YouTube 可能是为患有慢性疼痛的青少年提供社会支持的有前途的平台。
