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针对新确诊的小儿癌症患者的有效沟通:患者、家庭成员、医护人员及多学科团队应考虑的因素

Effective Communication for Newly Diagnosed Pediatric Patients With Cancer: Considerations for the Patients, Family Members, Providers, and Multidisciplinary Team.

作者信息

Dobrozsi Sarah, Trowbridge Amy, Mack Jennifer W, Rosenberg Abby R

机构信息

1 Medical College of Wisconsin/Children's Hospital of Wisconsin, Milwaukee, WI.

2 Seattle Children's Research Institute/University of Washington, Seattle, WA.

出版信息

Am Soc Clin Oncol Educ Book. 2019 Jan;39:573-581. doi: 10.1200/EDBK_238181. Epub 2019 May 17.

Abstract

Hearing that a child has been diagnosed with cancer is invariably difficult for both patients and their caregivers. Effective communication among patients, caregivers, and medical teams is necessary not only to deliver information and facilitate cancer care delivery but also to support patient and family coping and well-being. In this review, we focus on early communication in pediatric oncology care to (1) highlight the importance of communication between clinicians and patients and within the medical team and (2) describe resources and opportunities for clinicians to improve communication skills. For example, communication between patients and the medical team has several core functions, including the development of shared knowledge and decision-making and the formation of a therapeutic relationship. High-quality communication, regardless of the news being shared, supports and facilitates patient and parent adjustment to diagnosis, hope, and trust. Communication within the medical team supports the delivery of high-quality, personalized care. Despite these critical roles of communication in pediatric cancer care and evidence suggesting communication skills can be learned, formal training is limited. Resources include educational efforts, practical tools, and specific strategies to enhance systematic multidisciplinary team communication. Taken together, continued recognition of the importance of communication in pediatric cancer care has the potential to improve patient, family, and clinician experiences.

摘要

对于患者及其护理人员而言,听闻孩子被诊断出患有癌症总是件难事。患者、护理人员与医疗团队之间的有效沟通不仅对于传递信息、推动癌症护理的实施很有必要,而且对于支持患者及其家人应对疾病以及维持身心健康也很重要。在本综述中,我们聚焦于儿科肿瘤护理中的早期沟通,以(1)强调临床医生与患者之间以及医疗团队内部沟通的重要性,(2)描述临床医生提升沟通技巧的资源与机会。例如,患者与医疗团队之间的沟通有几个核心功能,包括形成共同认知与决策以及建立治疗关系。无论所传达的消息如何,高质量的沟通都能支持并促进患者及其父母对诊断结果的适应、希望和信任。医疗团队内部的沟通有助于提供高质量的个性化护理。尽管沟通在儿科癌症护理中起着这些关键作用,且有证据表明沟通技巧是可以习得的,但正规培训却很有限。资源包括教育活动、实用工具以及增强系统性多学科团队沟通的具体策略。综上所述,持续认识到沟通在儿科癌症护理中的重要性,有可能改善患者、家庭和临床医生的体验。

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