Benchimol Eric I, Bernstein Charles N, Bitton Alain, Murthy Sanjay K, Nguyen Geoffrey C, Lee Kate, Cooke-Lauder Jane, Siddiq Shabnaz, Windsor Joseph W, Carroll Matthew W, Coward Stephanie, El-Matary Wael, Griffiths Anne M, Jones Jennifer L, Kuenzig M Ellen, Lee Lawrence, Mack David R, Mawani Mina, Otley Anthony R, Singh Harminder, Targownik Laura E, Weizman Adam V, Kaplan Gilaad G
Canadian Gastro-Intestinal Epidemiology Consortium, Canada.
Children's Hospital of Eastern Ontario IBD Centre, Department of Pediatrics and School of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada.
J Can Assoc Gastroenterol. 2019 Feb;2(Suppl 1):S1-S5. doi: 10.1093/jcag/gwy052. Epub 2018 Nov 2.
Canada has among the highest rates of IBD in the world, and the number of people living with these disorders is growing rapidly. This has placed a high burden on the health care system and on the Canadian economy-a burden that is only expected to grow in the future. It is important to understand IBD and its impact on Canadian society in order to appropriately plan for health care expenditures, reduce the burden on patients and their families, and improve the quality of life for those afflicted with IBD. In Canada, there is a lack of public awareness of the impact of Crohn's disease and ulcerative colitis. Raising awareness is crucial to reducing the social stigma that is common with these diseases and to help individuals maximize their overall quality of life. A better public understanding of IBD can also help to raise and direct funds for research, which could lead to improved treatments and, ultimately, to a cure. This report from Canadian clinicians and researchers to Crohn's and Colitis Canada makes recommendations aimed at the public, policy-makers, scientific funding agencies, charitable foundations and patients regarding future directions for advocacy efforts and areas to emphasize for research spending. The report also identifies gaps in knowledge in the fields of clinical, health systems and epidemiological research.
加拿大是全球炎症性肠病发病率最高的国家之一，患这些疾病的人数正在迅速增加。这给医疗保健系统和加拿大经济带来了沉重负担，而且预计这一负担在未来还会加重。了解炎症性肠病及其对加拿大社会的影响，对于合理规划医疗保健支出、减轻患者及其家庭的负担以及提高炎症性肠病患者的生活质量至关重要。在加拿大，公众对克罗恩病和溃疡性结肠炎的影响缺乏认识。提高认识对于减少这些疾病常见的社会耻辱感以及帮助个人最大限度地提高整体生活质量至关重要。公众对炎症性肠病有更好的了解，也有助于筹集和引导研究资金，这可能会带来更好的治疗方法，并最终实现治愈。这份由加拿大临床医生和研究人员提交给加拿大克罗恩病与结肠炎协会的报告，针对公众、政策制定者、科学资助机构、慈善基金会和患者，就未来宣传工作的方向以及研究支出应重点关注的领域提出了建议。该报告还指出了临床、卫生系统和流行病学研究领域的知识空白。
