School of Social Sciences, Monash University, Melbourne, Australia.
The Cairnmillar Institute, Melbourne, Australia.
Health Qual Life Outcomes. 2019 Jul 16;17(1):123. doi: 10.1186/s12955-019-1185-y.
This exploratory study sought to establish the relationship between endometriosis-related pelvic pain, endometriosis symptom-frequency, and women's subjective wellbeing (SWB).
A purposive sample (N = 2061) of women with endometriosis aged between 18 and 62 years (M = 30.49 ± 7.45) completed an online questionnaire containing a measure of pelvic pain (Biberoglu & Behrman Scale; B&B), endometriosis symptom frequency, and an established measure of SWB (Personal Wellbeing Index: PWI).
Mean SWB total scores (58.35 ± 17.90) were considerably lower than those of women in the general population (western normative range = 70-80; mean = 76). On average, women reported moderate levels of pelvic pain (B&B mean = 5.96 ± 1.84), with a mean of 10.87 (± 4.81) endometriosis-related symptoms across the sample. Significant relationships were found between pelvic pain and SWB dimension and total scores (r's = - 0.20 to - 0.43, all p's < .001), and significant small to medium associations between symptom frequency and all but one of the dimensions of SWB (r's = - 0.12 to - 0.23, all p's < .007). In multivariate regression models accounting for age and delay in diagnosis, higher levels of pelvic pain were significantly associated with lower SWB scores across all eight dimensions of the PWI and total score (all p's < .002). Greater symptom frequency was significantly associated with lower levels of SWB for the dimensions of health, future security, life as a whole, and total scores (all p's < .002).
SWB was lower in women with endometriosis than SWB in women from the general population, and endometriosis related symptoms and pelvic pain explain significant proportions of the unique variance in women's SWB scores. Psychosocial support is needed for women dealing with endometriosis-related symptoms and pain in order to improve their wellbeing and quality of life.
本探索性研究旨在确定子宫内膜异位症相关盆腔疼痛、子宫内膜异位症症状频率与女性主观幸福感（SWB）之间的关系。
对年龄在 18 至 62 岁之间（M=30.49±7.45）的患有子宫内膜异位症的女性进行了一项有针对性的样本（N=2061）研究，她们完成了一份在线问卷，其中包括盆腔疼痛量表（Biberoglu & Behrman Scale；B&B）、子宫内膜异位症症状频率以及经过验证的 SWB 量表（个人幸福感指数：PWI）。
SWB 总分的平均得分（58.35±17.90）明显低于普通人群的得分（西方标准范围为 70-80；平均值为 76）。平均而言，女性报告的盆腔疼痛程度为中度（B&B 平均值=5.96±1.84），样本中平均有 10.87（±4.81）种与子宫内膜异位症相关的症状。盆腔疼痛与 SWB 各维度和总分之间存在显著相关性（r 值范围为-0.20 至-0.43，所有 p 值均<.001），症状频率与除一个维度之外的所有 SWB 维度之间存在显著的小至中度相关性（r 值范围为-0.12 至-0.23，所有 p 值均<.007）。在多变量回归模型中，考虑到年龄和诊断延迟，较高水平的盆腔疼痛与 PWI 的所有八个维度和总分的 SWB 得分降低显著相关（所有 p 值均<.002）。症状频率越高，SWB 的健康、未来安全、生活整体和总分维度得分越低，与 SWB 呈显著负相关（所有 p 值均<.002）。
与普通人群中的女性相比，患有子宫内膜异位症的女性的 SWB 较低，与子宫内膜异位症相关的症状和盆腔疼痛解释了女性 SWB 得分的显著差异。需要为患有子宫内膜异位症相关症状和疼痛的女性提供社会心理支持，以提高她们的幸福感和生活质量。
