Department of Cancer Epidemiology, Moffitt Cancer Center, Tampa, Florida, USA.
University of Utah College of Nursing, Salt Lake City, Utah, USA.
J Psychosoc Oncol. 2020 Mar-Apr;38(2):143-155. doi: 10.1080/07347332.2019.1642285. Epub 2019 Jul 25.
To describe advanced cancer patient-spouse caregiver couples' cancer-related concerns, determine dyadic concordance of concerns, and predict concordance based on demographic characteristics. Secondary analysis of cross-sectional self-report data. 88 advanced cancer patients and spouse self-identified caregivers. Participants individually completed questionnaires, including demographics and the Cancer Inventory of Problem Situations. Data are described and concordances were calculated using Kappa scores. Generalized Linear Modeling was used to predict concordances using demographic characteristics. The top patient concern was lack of energy, while the top spouse caregiver concern was worry about cancer. Couples generally had low concordance about concerns. Demographic characteristics did not significantly predict concordance. Low inter- and intra-dyadic congruence may suggest little communication within couples regarding cancer-related concerns. Healthcare providers should reinforce the importance of communication among patients and spouse caregivers to improve concordance and potentially reduce conflict.
描述晚期癌症患者-配偶照顾者夫妇的癌症相关问题，确定问题的双重一致性，并根据人口统计学特征预测一致性。横断面自我报告数据的二次分析。88 名晚期癌症患者和配偶自我认定的照顾者。参与者单独完成了问卷，包括人口统计学和癌症问题情况清单。使用 Kappa 分数描述数据并计算一致性。使用人口统计学特征的广义线性建模来预测一致性。患者最关心的问题是缺乏能量，而配偶照顾者最关心的问题是担心癌症。夫妻双方对问题的一致性通常较低。人口统计学特征不能显著预测一致性。夫妻之间的这种低一致性可能表明他们之间很少就癌症相关问题进行沟通。医疗保健提供者应强调患者和配偶照顾者之间沟通的重要性，以提高一致性并可能减少冲突。
