Thomson Heather, Prospero Lisa Di, Xiao Sarah, Harth Tamara, Legere Laurie, Rashleigh Laura, Parzanese Maria
Lawrence Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada.
Practice-Based Research and Innovation, Sunnybrook Health Sciences Centre, Toronto, ON, Canada.
J Patient Exp. 2024 Dec 12;11:23743735241302932. doi: 10.1177/23743735241302932. eCollection 2024.
Patient partners (PP) are well positioned to make meaningful contributions to healthcare through their lived experiences and personal narratives. However, researchers must ensure that patients are engaged authentically and collaboratively in knowledge generation. As part of a larger project, 4 PP were engaged in the co-design of a virtual reality video aimed at promoting an understanding of patients' lived experience with COVID-19 during the initial phase of the pandemic. This paper reports on findings from follow-up evaluation interviews with PP about their experiences participating in this project. Thematic analysis of interview transcripts resulted in 2 major themes as well as facilitators and barriers to PP engagement. Primary reasons to participate in the project were to contribute and give back to the community and make a difference for patients impacted by COVID-19. Engagement resulted in positive experiences and impacts for PP. Facilitators to engagement included feeling heard, being valued, and treated with respect. Barriers included length of time required to complete the project as well as PP health status.
患者伙伴（PP）凭借其生活经历和个人叙述，有能力为医疗保健做出有意义的贡献。然而，研究人员必须确保患者真正地、协作地参与知识生成过程。作为一个更大项目的一部分，4名患者伙伴参与了一个虚拟现实视频的共同设计，该视频旨在促进人们在疫情初期对患者感染新冠病毒后的生活经历的理解。本文报告了对患者伙伴进行跟进评估访谈的结果，内容涉及他们参与该项目的经历。对访谈记录的主题分析得出了2个主要主题以及患者伙伴参与的促进因素和障碍。参与该项目的主要原因是为社区做出贡献和回馈，并为受新冠病毒影响的患者带来改变。参与对患者伙伴产生了积极的体验和影响。参与的促进因素包括感到自己的意见被听取、受到重视和尊重。障碍包括完成项目所需的时间长度以及患者伙伴的健康状况。
