Bailey Benjamin, Arciuli Joanne
The University of Sydney, Australia.
Autism. 2020 Jul;24(5):1031-1046. doi: 10.1177/1362361319894829. Epub 2020 Jan 13.
Aboriginal and Torres Strait Islander people with developmental disabilities such as autism are among the most marginalised people in Australian society. We reviewed research involving Indigenous Australians with autism based on a search of the peer-reviewed and grey literature. Our search identified 1457 potentially relevant publications. Of these, 19 publications were in line with our main areas of inquiry: autism spectrum disorder diagnosis and prevalence, carer and service provider perspectives on autism, and autism support services. These included 12 journal publications, 3 conference presentations, 1 resource booklet and 1 thesis dissertation. Findings suggest similar prevalence rates for autism among Indigenous and non-Indigenous Australians, although some Aboriginal and Torres Strait Islander people with autism may not receive a diagnosis or may be misdiagnosed. We also discuss research on the perspectives of Aboriginal and Torres Strait Islander carers and Indigenous and non-Indigenous service providers, as well as barriers and strategies for improving access to diagnosis and support services.
患有自闭症等发育障碍的原住民和托雷斯海峡岛民是澳大利亚社会中最边缘化的群体之一。我们基于对同行评审文献和灰色文献的检索，对涉及患有自闭症的澳大利亚原住民的研究进行了综述。我们的检索确定了1457篇可能相关的出版物。其中，19篇出版物符合我们的主要研究领域：自闭症谱系障碍的诊断和患病率、照顾者和服务提供者对自闭症的看法，以及自闭症支持服务。这些包括12篇期刊出版物、3篇会议报告、1本资源手册和1篇学位论文。研究结果表明，澳大利亚原住民和非原住民中自闭症的患病率相似，尽管一些患有自闭症的原住民和托雷斯海峡岛民可能未得到诊断或被误诊。我们还讨论了关于原住民和托雷斯海峡岛民照顾者以及原住民和非原住民服务提供者观点的研究，以及改善诊断和支持服务获取的障碍和策略。
