Shon Changwoo, Jeon Boyoung, Lim Jae Hee, Park So Youn, Lee Ye-Rin, Kim Young-Eun, Park Saengryeol, Lee Na-Eun, Oh In-Hwan
Department of Urban Society Research, The Seoul Institute.
Division of Health Service for the Disabled, National Rehabilitation Center.
Medicine (Baltimore). 2020 Feb;99(8):e19188. doi: 10.1097/MD.0000000000019188.
This study concerns the accessibility of health information for people with disabilities. More specifically, by interviewing policy elites who have backgrounds in this area, we seek to obtain their opinions regarding the type of information people with disabilities require, and people with disabilities overall awareness of such information. Based on the information obtained, we also aim to identify methods of improving this accessibility.A focus group interview was conducted involving policy elites who had previously participated in decision-making processes for health policy. These elites were sourced from the fields of academia, medicine, and government. Content analysis was performed using NVivo 10, which is a computer-assisted/aided qualitative data-analysis software.The focus-group participants felt that relevant information for people with disabilities is provided in a fragmentary manner through several channels that have relatively low reliability, which creates difficulties for a significant portion of the target recipients. Discussions regarding the type of health information required by people with disabilities yielded the following topic clusters: information regarding health-care providers who specialize in specific disability types and regarding health behaviors for certain lifecycles, and information that helps people with disabilities return to society. Further, the focus group recommended 2 means of providing essential health information to PWDs in the future. As short-term strategies, the participants proposed simplifying the existing, fragmented information channels and the creation of a comprehensive web-based information portal with an associated call center. As a long-term strategy, they proposed the development of smart-device-based information services that are tailored to the needs of individuals.Efforts to reduce the disparities in health information for people with disabilities are essential for addressing the existing inequality regarding the availability of health information.
本研究关注残疾人获取健康信息的情况。更具体地说，通过采访在该领域有背景的政策精英，我们试图获取他们对残疾人所需信息类型以及残疾人对这类信息的总体认知的看法。基于所获得的信息，我们还旨在确定改善这种可及性的方法。
我们对曾参与健康政策决策过程的政策精英进行了焦点小组访谈。这些精英来自学术界、医学领域和政府部门。使用NVivo 10进行了内容分析，NVivo 10是一款计算机辅助定性数据分析软件。
焦点小组参与者认为，通过几个可靠性相对较低的渠道以零散方式为残疾人提供相关信息，这给很大一部分目标受众带来了困难。关于残疾人所需健康信息类型的讨论产生了以下主题类别：关于专门针对特定残疾类型的医疗服务提供者的信息、关于某些生命周期的健康行为的信息，以及有助于残疾人重返社会的信息。此外，焦点小组建议了未来向残疾人提供基本健康信息的两种方式。作为短期策略，参与者提议简化现有的零散信息渠道，并创建一个带有相关呼叫中心的综合性网络信息门户。作为长期策略，他们提议开发基于智能设备的、根据个人需求量身定制的信息服务。
努力减少残疾人健康信息方面的差距对于解决健康信息可得性方面现有的不平等至关重要。
