Centre for Primary Health Care and Equity, UNSW, Sydney, Australia.
Forum for Health Research and Development, Dharan, Nepal.
BMC Public Health. 2020 Mar 6;20(1):300. doi: 10.1186/s12889-020-8404-7.
Chronic Obstructive Pulmonary Disease (COPD) is a progressive and debilitating condition that affects individuals' quality of life. COPD self-management and supports provided by carers is key to the quality of life people living with COPD. Health literacy (HL) and Patient Activation (PA) are main drivers of self-management practices (SMPs). However, their contribution remains to be fully explored. This study aimed to examine the level of self-management practices, and the relationship with socio-demographic factors, HL and PA among multi-morbid COPD patients from rural Nepal.
This is a cross-sectional study conducted between July 2018 and January 2019. Patients completed a survey, including Self-management Practices questionnaire (SMPQ), five domains of the Health Literacy Questionnaire (HLQ), and Patient Activation Measure (PAM). The relationship between HL, PAM, and SMPs was examined using univariate statistics. Multivariable analysis was conducted to identify the factors associated with SMPs.
A total of 238 patients responded to the study. The mean score of SMPQ was 45.31(SD = 9.00). The HLQ and PAM scores were positively correlated with the total score of SMPQ. Low level of SMPs were found to be positively associated with being uneducated (β = - 0.43, p = .001), having a low family income (β = - 5.22, p = .002), and, negatively associated with the presence of more than one co-morbidity (β = 3.58, p = 0.007) after controlling for other socio-demographic variables in the multivariable analysis.
The overall SMPs among this sample of Nepalese with COPD were low. Our findings highlight the need to implement a self-management intervention program involving patient activation and health literacy-focused activities for COPD, creating a support system for patients from low-income families and low education.
慢性阻塞性肺疾病(COPD)是一种进行性和使人虚弱的疾病,影响患者的生活质量。COPD 患者的自我管理和护理人员提供的支持是提高 COPD 患者生活质量的关键。健康素养(HL)和患者激活(PA)是自我管理实践(SMPs)的主要驱动因素。然而,它们的贡献仍有待充分探索。本研究旨在检查尼泊尔农村多合并症 COPD 患者的自我管理实践水平,以及与社会人口因素、HL 和 PA 的关系。
这是一项横断面研究,于 2018 年 7 月至 2019 年 1 月期间进行。患者完成了一项调查,包括自我管理实践问卷(SMPQ)、健康素养问卷(HLQ)的五个领域和患者激活测量(PAM)。使用单变量统计分析检查 HL、PAM 和 SMPs 之间的关系。进行多变量分析以确定与 SMPs 相关的因素。
共有 238 名患者对研究做出了回应。SMPQ 的平均得分为 45.31(SD=9.00)。HLQ 和 PAM 得分与 SMPQ 的总分呈正相关。在多变量分析中,控制其他社会人口变量后,发现低水平的 SMPs 与未受教育(β=-0.43,p=0.001)、家庭收入低(β=-5.22,p=0.002)和合并症超过一种(β=3.58,p=0.007)呈正相关。
本研究中尼泊尔 COPD 患者的总体 SMPs 较低。我们的研究结果强调需要实施一项自我管理干预计划,该计划涉及患者激活和以健康素养为重点的活动,为来自低收入家庭和低教育程度的患者建立支持系统。