Kastner Kathleen, Pinto Neethi, Msall Michael E, Sobotka Sarah
Division of Neurodevelopmental-Behavioral Pediatrics, Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, WI.
Section of Pediatric Critical Care, Department of Pediatrics, University of Chicago, Chicago, IL.
Crit Care Explor. 2019 Aug 9;1(8):e0033. doi: 10.1097/CCE.0000000000000033. eCollection 2019 Aug.
For children and their families, PICU admission can be one of the most stressful and traumatic experiences in their lives. Children admitted to the PICU and their parents experience sequelae following admission including psychologic symptoms and lower health-related quality of life. The impact of a PICU admission on school attendance and performance may influence these sequelae. The purpose of our study was to examine how community supports from pediatricians and schools influence school success after critical illness.
Parents were recruited during their child's admission to the PICU. Three months after discharge, parents completed follow-up questionnaires via telephone.
PICU in an urban academic children's hospital.
Thirty-three parents were enrolled in the study, and 21 (64%) completed phone follow-up.
Forty-three percent of children missed 7 or more days of school while admitted to the PICU. Sixty-seven percent of parents reported that their pediatrician did not ask about missed school, and 29% felt their child's grades worsened since admission. Twenty percent of respondents felt that their child's school did not provide adequate services to help their child catch up.
There are missed opportunities for care coordination and educational support after critical illness. The transition back to school is challenging for some children, as reported by parents who described inadequate support from the school after PICU hospitalization and a subsequent decline in their child's school performance. Additional studies are needed to develop proactive community supports to improve the transition back to school for a child after critical illness.
对于儿童及其家庭而言,入住儿科重症监护病房(PICU)可能是他们生活中压力最大、创伤最深的经历之一。入住PICU的儿童及其父母在入院后会经历一系列后果,包括心理症状和较低的健康相关生活质量。PICU住院对上学出勤率和成绩的影响可能会影响这些后果。我们研究的目的是探讨儿科医生和学校提供的社区支持如何影响危重症康复后的学业成就。
在儿童入住PICU期间招募家长。出院三个月后,家长通过电话完成随访问卷。
一家城市学术儿童医院的PICU。
33名家长参与了该研究,21名(64%)完成了电话随访。
43%的儿童在入住PICU期间缺课7天或以上。67%的家长表示他们的儿科医生没有询问孩子缺课的情况,29%的家长认为孩子自入院以来成绩变差。20%的受访者认为孩子的学校没有提供足够的服务来帮助孩子赶上学习进度。
危重症康复后存在护理协调和教育支持方面的机会缺失。一些儿童重返学校面临挑战,家长报告称,PICU住院后学校支持不足,随后孩子的学业成绩下降。需要进一步研究以制定积极的社区支持措施,改善危重症儿童康复后的返校过渡情况。