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《葡萄牙临终关怀精神慰藉问卷》在姑息治疗患者中的文化调适与效度验证

Cultural adaptation and validation of the Portuguese End of Life Spiritual Comfort Questionnaire in Palliative Care patients.

作者信息

Pinto Sara Maria Oliveira, Berenguer Sílvia Maria Alves Caldeira, Martins José Carlos Amado, Kolcaba Katharine

机构信息

Instituto de Ciências Biomédicas Abel Salazar, University of Porto, Porto, Portugal.

Centro Hospitalar São João, Porto, Portugal.

出版信息

Porto Biomed J. 2016 Sep-Oct;1(4):147-152. doi: 10.1016/j.pbj.2016.08.003. Epub 2016 Sep 17.

Abstract

BACKGROUND

Holistic comfort is an important outcome in palliative care and an important goal for patients, relatives and healthcare workers. Holistic comfort considers one's acceptance of life circumstances, support from loved ones and health care professionals, and peaceful resolution of relationships during stressful situations. However, this type of comfort is still difficult to measure, particularly in palliative care patients, as there is a lack of instruments available, especially in the Portuguese language. This study aims to provide an accurate and sensitive instrument to assess the spiritual comfort of Portuguese palliative care patients.

OBJECTIVE

To perform the cultural adaptation and validation of a Portuguese version of the End of Life Comfort Planning Questionnaire in Palliative Care patients.

METHODS

Methodological research, with analytical approach. The translation, synthesis, back translation, review, pretest, semantic evaluation and analysis of the psychometric properties were performed. A total of 141 palliative care patients from acute medical-surgical settings at a central hospital in the north of Portugal were recruited. The Ethics Committee approved the research.

RESULTS

The internal consistency analysis of the adapted instrument resulted in a global alpha value of 0.84 and the factor analysis presented a solution with five factors with rational meaning. The Portuguese version comprised 20 items.

CONCLUSIONS

The instrument has good psychometric properties. It was reliable, valid and sensitive to the existence of the spiritual comfort of palliative care patients, and appropriate for further research.

摘要

背景

整体舒适是姑息治疗的重要结果,也是患者、家属和医护人员的重要目标。整体舒适考虑个体对生活状况的接受程度、来自亲人及医护人员的支持,以及在压力情境下关系的平和解决。然而,这种舒适感仍难以衡量,尤其是在姑息治疗患者中,因为缺乏可用的工具,特别是葡萄牙语版本的工具。本研究旨在提供一种准确且灵敏的工具,以评估葡萄牙姑息治疗患者的精神舒适状况。

目的

对姑息治疗患者临终舒适规划问卷的葡萄牙语版本进行文化调适和验证。

方法

采用分析性方法的方法学研究。进行了翻译、综合、回译、审查、预测试、语义评估以及心理测量学特性分析。共招募了葡萄牙北部一家中心医院急性内科 - 外科病房的141名姑息治疗患者。伦理委员会批准了该研究。

结果

调适后工具的内部一致性分析得出总体α值为0.84,因子分析呈现出一个具有合理意义的五因子解决方案。葡萄牙语版本包含20个条目。

结论

该工具具有良好的心理测量学特性。它可靠、有效且对姑息治疗患者精神舒适的存在敏感,适合进一步研究。

相似文献

本文引用的文献

1
A Systematic Literature Review Toward the Characterization of Comfort.关于舒适度特征的系统文献综述
Holist Nurs Pract. 2016 Jan-Feb;30(1):14-24. doi: 10.1097/HNP.0000000000000126.
2
Is Impaired Comfort a Nursing Diagnosis?舒适度受损是一项护理诊断吗?
Int J Nurs Knowl. 2016 Oct;27(4):205-209. doi: 10.1111/2047-3095.12121. Epub 2015 Oct 13.
3
Symptoms other than pain in palliative care in Portugal.葡萄牙姑息治疗中除疼痛以外的症状。
Am J Hosp Palliat Care. 2015 May;32(3):335-40. doi: 10.1177/1049909114520715. Epub 2014 Jan 23.
5
Comfort measures: a concept analysis.舒适措施:一项概念分析。
Res Theory Nurs Pract. 2013;27(2):95-114. doi: 10.1891/1541-6577.27.2.95.
7
A cross-sectional survey of pain in palliative care in Portugal.葡萄牙姑息治疗中的疼痛横断面调查。
Support Care Cancer. 2013 Jul;21(7):2033-9. doi: 10.1007/s00520-013-1746-2. Epub 2013 Feb 26.
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[Measuring quality of life in palliative care].[姑息治疗中的生活质量测量]
Acta Med Port. 2008 Mar-Apr;21(2):111-24. Epub 2008 Jul 26.

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