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癌症、健康素养与幸福感:化疗患者的观点

Cancer, Health Literacy, and Happiness: Perspectives from Patients under Chemotherapy.

作者信息

Oliveira Pinto Sara Maria, Alves Caldeira Berenguer Sílvia Maria, Martins José Carlos Amado

机构信息

Abel Salazar Biomedical Sciences Institute, University of Porto, Rua de Jorge Viterbo Ferreira No. 228, 4050-313 Oporto, Portugal.

出版信息

Nurs Res Pract. 2013;2013:291767. doi: 10.1155/2013/291767. Epub 2013 Sep 5.

Abstract

Cancer is a dreaded disease that affects all dimensions of human life. In this context, issues related to the quality of life-as happiness, perception about health status, or health literacy-are important. This study aims to analyze the following topics the perception: the Portuguese cancer patients have about their health status while undergoing chemotherapy, the satisfaction with the information relating to their health, their level of happiness, and their vision of the future. An observational, cross-sectional, and descriptive study was developed. Data were collected between May and July 2012 in the day hospital of a central hospital in northern Portugal. The sample was composed of 92 cancer patients who were asked to answer a questionnaire during chemotherapy. The results indicate that, despite this life-threatening disease, patients consider themselves fairly happy and have an optimistic view of the future. Information about their health condition and religious beliefs was important coping mechanisms to help dealing with the suffering caused by the disease. The study highlights the importance of providing care in a holistic way. Nurses must be alert and available to listen, answer questions, provide supporting structures, or refer to other professionals when needed.

摘要

癌症是一种可怕的疾病,会影响人类生活的方方面面。在这种背景下,与生活质量相关的问题——如幸福感、对健康状况的认知或健康素养——就显得很重要。本研究旨在分析以下几个方面:葡萄牙癌症患者在接受化疗时对自身健康状况的认知、对与健康相关信息的满意度、他们的幸福水平以及对未来的展望。开展了一项观察性、横断面描述性研究。2012年5月至7月期间,在葡萄牙北部一家中心医院的日间病房收集数据。样本由92名癌症患者组成,他们被要求在化疗期间回答一份问卷。结果表明,尽管身患这种危及生命的疾病,患者仍认为自己相当幸福,并对未来持乐观态度。有关其健康状况和宗教信仰的信息是帮助应对疾病所致痛苦的重要应对机制。该研究强调了提供整体护理的重要性。护士必须保持警觉,随时倾听、回答问题、提供支持结构,或在需要时转介给其他专业人员。

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