Hughes Elizabeth K, Poker Suzannah, Bortz Amy, Yeo Michele, Telfer Michelle, Sawyer Susan M
Department of Pediatrics, University of Melbourne, Melbourne, VIC, Australia.
Murdoch Children's Research Institute, Melbourne, VIC, Australia.
Front Psychiatry. 2020 Apr 21;11:310. doi: 10.3389/fpsyt.2020.00310. eCollection 2020.
Incorporating consumer perspectives is an important but often overlooked opportunity to optimize treatment engagement and outcomes for adolescents with eating disorders. This study explored the experience of care of adolescents and their parents at a multidisciplinary specialist eating disorders service providing family-based treatment (FBT) as first-line treatment.
Eighty-five adolescents and 145 parents who completed FBT at the service between 2013 and 2015 were surveyed in 2017 about their experience of care. A study-designed survey asked respondents to rate on Likert scales their experience of service access, intake assessment, education, support, interactions with the treatment team, recovery, and the discharge process. Open-ended comments on helpful and unhelpful aspects of the service provided further context on the ratings.
Overall families were very positive about their experience, particularly in regard to assessment, education, interactions with the team, and achieving physical health. Although parents tended to be more satisfied, adolescents also held the service in high regard. Some areas were identified that could be improved, including treatment delays, carer support, therapeutic alliance, and preparation for discharge.
Surveying families about their experience of care provides an important opportunity to identify service strengths as well as services gaps. The results indicated several areas that specialist eating disorder services could focus on to ensure that the services provided, including FBT, fully meet the needs of families and optimize adolescents' treatment experiences.
纳入消费者视角是优化饮食失调青少年治疗参与度和治疗效果的一个重要但常被忽视的机会。本研究探讨了在一家提供以家庭为基础的治疗（FBT）作为一线治疗的多学科专科饮食失调服务机构中，青少年及其父母的就医体验。
2017年，对2013年至2015年期间在该服务机构完成FBT的85名青少年和145名父母进行了关于他们就医体验的调查。一项研究设计的调查问卷要求受访者用李克特量表对他们在服务获取、入院评估、教育、支持、与治疗团队的互动、康复及出院过程等方面的体验进行评分。对该服务机构有益和无益方面的开放式评论为评分提供了更多背景信息。
总体而言，家庭对他们的体验非常满意，特别是在评估、教育、与团队的互动以及实现身体健康方面。虽然父母往往更满意，但青少年也对该服务给予高度评价。确定了一些可以改进的方面，包括治疗延误、照顾者支持、治疗联盟以及出院准备。
调查家庭的就医体验为识别服务优势和服务差距提供了一个重要机会。结果表明，专科饮食失调服务机构可以关注几个方面，以确保所提供的服务，包括FBT，充分满足家庭的需求并优化青少年的治疗体验。
