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消化内容:在线结直肠癌教育网站分析。

Digesting the Contents: an Analysis of Online Colorectal Cancer Education Websites.

机构信息

Department of Family Medicine, Faculty of Medicine, University of British Columbia, 5950 University Blvd, Vancouver, BC, V6T 1Z3, Canada.

Department of Orthopedic Surgery, University of Calgary, 2500 University Drive N.W., Calgary, AB, T2N 1N4, Canada.

出版信息

J Cancer Educ. 2022 Apr;37(2):263-273. doi: 10.1007/s13187-020-01864-5. Epub 2020 Sep 9.

Abstract

Online educational resources have an impact on patient understanding, opinion, and behavior. More colorectal cancer patients are being diagnosed and using the internet to search for information. This study aims to provide the most in-depth and comprehensive examination of online colorectal resources to date. An internet search using the terms "colorectal cancer," "colon cancer," and "rectal cancer" were performed, with meta-search engines "Dogpile," "Yippy," and "Google." A total of 741, 759, and 703 websites were returned by the search engines respectively. A list of the "top 100 websites" was compiled by placing the sites in average rank order. The websites were evaluated using a validated structured rating tool. Inter-rater reliability was evaluated using kappa statistics, and the results were analyzed using descriptive statistics. Website affiliations were 40% commercial and 35% from non-profit organizations. Most websites disclosed ownership (93%) and had no apparent bias (94%). Authorship disclosure was poor (17%). Most sites were interactive (84%) and organized (70% with at least 4/5 features). Readability was at a senior high school level on average. Content coverage and accuracy were the highest in the areas of etiology (96% coverage) and symptoms (95% coverage) and lowest in areas of treatment (72% coverage) and prognosis (43% coverage).Colorectal cancer online information can be improved in accountability, readability, content accuracy, and completeness. Author disclosure, more accurate and updated citations, and a lower grade level of readability are needed. More complete and accurate information are needed, especially in the areas of treatment and prognosis.

摘要

在线教育资源对患者的理解、观点和行为有影响。越来越多的结直肠癌患者被诊断出来,并利用互联网搜索信息。本研究旨在对迄今为止的在线结直肠资源进行最深入和全面的检查。使用术语“结直肠癌”、“结肠癌”和“直肠癌”进行互联网搜索,并使用元搜索引擎“Dogpile”、“Yippy”和“Google”进行搜索。搜索引擎分别返回了 741、759 和 703 个网站。通过将这些网站按平均排名排列,编制了一个“前 100 名网站”的列表。使用经过验证的结构化评分工具对这些网站进行评估。使用 Kappa 统计评估组内可靠性,使用描述性统计分析结果。网站关联有 40%是商业的,35%是非营利组织的。大多数网站(93%)披露了所有权,并且没有明显的偏见(94%)。作者披露情况不佳(17%)。大多数网站是互动的(84%),并且有组织(70%至少有 4/5 的功能)。平均而言,可读性处于高中水平。内容覆盖范围和准确性在病因学(96%的覆盖率)和症状(95%的覆盖率)方面最高,在治疗(72%的覆盖率)和预后(43%的覆盖率)方面最低。结直肠癌在线信息在问责制、可读性、内容准确性和完整性方面可以得到改善。需要作者披露、更准确和更新的引文,以及更低的阅读水平。需要更完整和准确的信息,特别是在治疗和预后方面。

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