Undergraduate Medical Program, Faculty of Medicine, University of British Columbia, 2775 Laurel Street, 10th floor, Vancouver, British Columbia, V5Z 1M9, Canada.
Department of Radiation Oncology, British Columbia Cancer Agency-Vancouver Center, 600 West 10th Avenue, Vancouver, British Columbia, V5Z 4E6, Canada.
J Cancer Educ. 2022 Dec;37(6):1598-1605. doi: 10.1007/s13187-021-01996-2. Epub 2021 Mar 26.
Glioblastoma multiforme (GBM) carries a poor prognosis, and patients often have trouble accessing high-quality resources. The purpose of this study is to systematically evaluate the information available to GBM patients on the Internet. An Internet search using the term "Glioblastoma Multiforme" was performed using three different search engines: Google, Yippy, and Dogpile. A structured rating tool, validated and developed by our research group, was applied to evaluate the top 100 websites with respect to accuracy, coverage, readability, currency, structure, attribution, and interactivity. Among the 100 websites evaluated, definition and treatment were the most accurately written sections (98% and 78% of websites). Etiology/risk factors and diagnosis were the least accurately written sections (40% and 52% of websites). Half of the websites did not cover etiology/risk factors, and 47% did not cover diagnosis. Only 21% of websites provided complete authorship information, and almost half of websites (46%) were affiliated with commercial websites (.com). Sixty three percent of websites were at a post-secondary reading level. The majority of online GBM websites contains accurate but incomplete information. Many websites do not provide authorship information, last modification dates, and reference materials. Readability was generally inappropriate for GBM patients. This research can be useful for clinicians to guide GBM patients to quality online resources.
胶质母细胞瘤（GBM）预后不良，患者通常难以获得高质量的资源。本研究旨在系统评估互联网上可供 GBM 患者使用的信息。使用三个不同的搜索引擎：Google、Yippy 和 Dogpile，使用术语“Glioblastoma Multiforme”进行了互联网搜索。我们研究小组验证和开发的结构化评分工具用于评估前 100 个网站的准确性、涵盖范围、可读性、时效性、结构、归因和交互性。在所评估的 100 个网站中，定义和治疗是最准确的写作部分（98%和 78%的网站）。病因/危险因素和诊断是写作最不准确的部分（40%和 52%的网站）。一半的网站没有涵盖病因/危险因素，47%的网站没有涵盖诊断。只有 21%的网站提供完整的作者信息，近一半的网站（46%）与商业网站（.com）有关。63%的网站阅读水平达到中学后。大多数在线 GBM 网站包含准确但不完整的信息。许多网站没有提供作者信息、最后修改日期和参考资料。可读性通常不适合 GBM 患者。这项研究可用于指导临床医生为 GBM 患者提供优质的在线资源。
