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器官移植受者的身体活动体验:健康、自我护理与阈限转换

Organ Transplant Recipients' Experiences of Physical Activity: Health, Self-Care, and Transliminality.

作者信息

Wiltshire Gareth, Clarke Nicola J, Phoenix Cassandra, Bescoby Carl

机构信息

Loughborough University, Loughborough, United Kingdom.

Leeds Beckett University, Leeds, United Kingdom.

出版信息

Qual Health Res. 2021 Jan;31(2):385-398. doi: 10.1177/1049732320967915. Epub 2020 Oct 30.

DOI:10.1177/1049732320967915
PMID:33124516
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7750649/
Abstract

Physical activity (PA) is an important lifestyle component of long-term health management for organ transplant recipients, yet little is known about recipients' experiences of PA. The purpose of this study was to shed light on this experience and to investigate the possible implications of PA in the context of what is a complex patient journey. Phenomenological analysis was used to examine interviews with 13 organ transplant recipients who had taken part in sporting opportunities posttransplantation. Findings illuminate how participants' experiences of PA were commonly shaped by the transliminal nature of being an organ transplant recipient as well as a sense of duty to enact health, self-care, and donor-directed gratitude. This analysis underlines the potential role of PA in supporting organ transplant recipients' attempts to live well following transplantation and makes novel connections between PA and our existing knowledge about challenges related to identity, survivorship, obligation, and patient empowerment.

摘要

体育活动(PA)是器官移植受者长期健康管理的重要生活方式组成部分,但对于受者的体育活动体验却知之甚少。本研究的目的是阐明这种体验,并在复杂的患者历程背景下调查体育活动可能产生的影响。采用现象学分析方法,对13名器官移植受者进行访谈,这些受者在移植后参加了体育活动。研究结果揭示了参与者的体育活动体验通常是如何受到作为器官移植受者的阈限性质以及践行健康、自我护理和对捐赠者感恩的责任感所塑造的。该分析强调了体育活动在支持器官移植受者移植后努力过上美好生活方面的潜在作用,并在体育活动与我们现有关于身份认同、生存、义务和患者赋权相关挑战的知识之间建立了新的联系。

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Organ Transplant Recipients' Experiences of Physical Activity: Health, Self-Care, and Transliminality.器官移植受者的身体活动体验:健康、自我护理与阈限转换
Qual Health Res. 2021 Jan;31(2):385-398. doi: 10.1177/1049732320967915. Epub 2020 Oct 30.
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Front Sports Act Living. 2024 Sep 24;6:1439399. doi: 10.3389/fspor.2024.1439399. eCollection 2024.
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What is said about #donateliver or #liverdonor? Reflexive thematic analysis of Twitter (X) posts from 2012 to 2022.关于#捐赠肝脏或#肝脏捐赠者都说了些什么?对2012年至2022年推特(X)帖子的反思性主题分析。
BMC Public Health. 2024 Jul 16;24(1):1904. doi: 10.1186/s12889-024-19381-1.
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Assessing health literacy in transplant patients to better tailor the content of their therapeutic education: an observational study.评估移植患者的健康素养,以便更好地调整其治疗教育内容:一项观察性研究。
Eur J Hosp Pharm. 2024 Oct 25;31(6):537-542. doi: 10.1136/ejhpharm-2022-003553.
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A New Normality Illuminated by Past and Present! A Qualitative Study: Experiences and Challenges of Everyday Life in Patients With Advanced Heart or Lung Failure.由过去与现在照亮的新常态!一项定性研究:晚期心力衰竭或肺衰竭患者的日常生活经历与挑战。
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本文引用的文献

1
Physical Activity After Solid Organ Transplantation: Comprehensive Guidance Is Needed to Advance Future Research Efforts.实体器官移植后的体育活动:需要全面指导以推动未来的研究工作。
Transplantation. 2019 Apr;103(4):666-667. doi: 10.1097/TP.0000000000002544.
2
The efficacy of exercise training in kidney transplant recipients: a meta-analysis and systematic review.运动训练对肾移植受者的疗效:一项荟萃分析与系统评价
Clin Exp Nephrol. 2019 Feb;23(2):275-284. doi: 10.1007/s10157-018-1633-8. Epub 2018 Aug 24.
3
Shedding light on an unknown reality in solid organ transplant patients' self-management: A contextual inquiry study.揭示实体器官移植患者自我管理中未知现实:一项情境调查研究。
Clin Transplant. 2018 Aug;32(8):e13314. doi: 10.1111/ctr.13314. Epub 2018 Jul 2.
4
Self-management challenges and support needs among kidney transplant recipients: A qualitative study.肾移植受者的自我管理挑战与支持需求:一项定性研究。
J Adv Nurs. 2018 Oct;74(10):2393-2405. doi: 10.1111/jan.13730. Epub 2018 Jul 10.
5
Physical Activity in Kidney Transplant Recipients: A Review.肾移植受者的体力活动:综述。
Am J Kidney Dis. 2018 Sep;72(3):433-443. doi: 10.1053/j.ajkd.2017.12.005. Epub 2018 Feb 23.
6
The Transliminal Self: The Ebb and Flow of the Kidney Transplant Experience.阈下自我:肾移植体验的潮起潮落。
Qual Health Res. 2018 Mar;28(4):561-571. doi: 10.1177/1049732317743937. Epub 2017 Dec 7.
7
Navigating the new, transplanted self: how recipients manage the cognitive risks of organ transplantation.应对全新的移植自我:器官移植受者如何应对认知风险
Sociol Health Illn. 2017 Nov;39(8):1496-1513. doi: 10.1111/1467-9566.12610. Epub 2017 Oct 10.
8
Messy entanglements: research assemblages in heart transplantation discourses and practices.混乱的纠葛:心脏移植话语与实践中的研究组合
Med Humanit. 2018 Mar;44(1):46-54. doi: 10.1136/medhum-2017-011212. Epub 2017 Sep 28.
9
Exercise-based cardiac rehabilitation in heart transplant recipients.心脏移植受者基于运动的心脏康复
Cochrane Database Syst Rev. 2017 Apr 4;4(4):CD012264. doi: 10.1002/14651858.CD012264.pub2.
10
Practical Recommendations for Long-term Management of Modifiable Risks in Kidney and Liver Transplant Recipients: A Guidance Report and Clinical Checklist by the Consensus on Managing Modifiable Risk in Transplantation (COMMIT) Group.移植术后可改变风险的长期管理实用建议:移植术后可改变风险共识 (COMMIT) 专家组的指导报告和临床检查表。
Transplantation. 2017 Apr;101(4S Suppl 2):S1-S56. doi: 10.1097/TP.0000000000001651.