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照片心声——让智障人士参与创新并赋予其权力

Photovoice-Towards Engaging and Empowering People with Intellectual Disabilities in Innovation.

作者信息

Wass Sofie, Safari Mugula Chris

机构信息

Centre for eHealth, University of Agder, 4879 Grimstad, Norway.

Department of Psychosocial Health, University of Agder, 4879 Grimstad, Norway.

出版信息

Life (Basel). 2020 Nov 5;10(11):272. doi: 10.3390/life10110272.

Abstract

E-health and welfare technology offer new ways to support health and social care delivery. While initiatives are made to engage disadvantaged user groups in innovation, people with intellectual disabilities tend to be excluded from design activities. This is a concern as this group can benefit from the use of assistive technology. However, it can be time-consuming and challenging to involve end-users in the design of technology. This calls for processes that are creative, empowering and that facilitate user involvement. In this study, we report and reflect on the process of using photovoice to understand user needs and to empower participants with intellectual disability in an innovation process. Nine persons with intellectual disability participated in photovoice to identify user needs connected to the design of assistive technology. The findings in our study suggest that the use of photovoice can contribute to the sharing of contextual and individual needs and an empowerment process that includes coping, self-determination and ownership. Photovoice can be a tool to reduce or remove some of the challenges that are faced when identifying user needs and is a way to strengthen the individual's capacity to cope with the demands of participating in an innovation process.

摘要

电子健康与福利技术为支持医疗和社会护理服务提供了新途径。尽管已采取举措让弱势用户群体参与创新,但智障人士往往被排除在设计活动之外。鉴于该群体能够从辅助技术的使用中受益,这令人担忧。然而,让最终用户参与技术设计可能既耗时又具有挑战性。这就需要富有创造性、能赋予权力且便于用户参与的流程。在本研究中,我们报告并反思了在一个创新过程中运用摄影声音法来了解用户需求并赋予智障参与者权力的过程。九名智障人士参与了摄影声音法,以确定与辅助技术设计相关的用户需求。我们研究中的结果表明,摄影声音法有助于分享背景和个人需求,以及一个包括应对、自我决定和自主的赋权过程。摄影声音法可以成为一种工具,减少或消除在确定用户需求时所面临的一些挑战,并且是增强个人应对参与创新过程要求的能力的一种方式。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/93e7/7694372/931965df404a/life-10-00272-g001.jpg

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