Capewell Carmel, Ralph Sue, Symonds Melissa
School of Education, Oxford Brookes University, Oxford, UK.
School of Education, University of Northampton, Northampton, UK.
J Patient Exp. 2020 Dec;7(6):1316-1323. doi: 10.1177/2374373520930463. Epub 2020 Jun 23.
The emotional impact of a diagnosis of breast cancer in women and listening to their affective needs is not widely reported in the literature. Recent policies globally emphasize the importance of incorporating patients' views in treatment. The aim of the study was to provide insights for health care professionals and make recommendations based on patients' experiences. Breast cancer survivorship is increasing, but the long-term support needs of such women are less understood.
This exploratory study asked 20 white women from 2 urban centers in the UK about their experience of diagnosis and treatment for breast cancer. It used an adaptation of the photovoice methodology to examine a health issue and identify issues of importance and relevance to patients. It recognizes their expertise in their situation.
The themes identified were: Fear/Shock; Waiting; Lack of Control; Communication/Practicalities; Body image changes; Specialist versus nonspecialist Centers/Staff; and Ongoing Support.
The women provided images, with a written summary of their meaning, and discussed them in groups. They identified good practice and suggestions for how to improve the experience of diagnosis and treatment of breast cancer.
The photovoice methodology provides a low-cost, easy to implement a way for patients to provide insight into their experience and contribute their knowledge to improve clinical practice. Visual images and patients' words allow clinicians to have greater insight into the environment and priorities of patients which could have implications for their response to treatment and long-term care.
女性被诊断出患有乳腺癌后的情绪影响以及倾听她们的情感需求，在文献中并未得到广泛报道。全球近期的政策强调了在治疗中纳入患者观点的重要性。本研究的目的是为医疗保健专业人员提供见解，并根据患者的经历提出建议。乳腺癌幸存者数量在增加，但这类女性的长期支持需求却鲜为人知。
这项探索性研究询问了来自英国两个城市中心的20名白人女性关于她们乳腺癌诊断和治疗的经历。它采用了一种改良的摄影声音方法来研究一个健康问题，并确定对患者重要且相关的问题。该方法认可她们在自身情况方面的专业知识。
确定的主题有：恐惧/震惊；等待；缺乏控制；沟通/实际问题；身体形象变化；专科与非专科中心/工作人员；以及持续支持。
这些女性提供了图片，并附有对其含义的书面总结，然后分组进行讨论。她们确定了良好做法以及关于如何改善乳腺癌诊断和治疗体验的建议。
摄影声音方法为患者提供了一种低成本、易于实施的方式，使其能够深入了解自身经历，并贡献自身知识以改善临床实践。视觉图像和患者的话语使临床医生能够更深入地了解患者的情况和优先事项，这可能会影响患者对治疗的反应和长期护理。
