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功能性癫痫患者生活的社会方面:填补生物心理社会公式中的空白。

Social aspects of life in patients with functional seizures: Closing the gap in the biopsychosocial formulation.

机构信息

Epilepsy Research Center, Shiraz University of Medical Sciences, Shiraz, Iran; Jefferson Comprehensive Epilepsy Center, Department of Neurology, Thomas Jefferson University, Philadelphia, PA, USA.

Department of Neurology, Hospital of Merano (SABES-ASDAA), Merano-Meran, Italy.

出版信息

Epilepsy Behav. 2021 Apr;117:107903. doi: 10.1016/j.yebeh.2021.107903. Epub 2021 Mar 16.

Abstract

The human, as a biological system, is an open system embedded within larger systems -including the family, culture, and socio-political environment. In this context, a patient with functional seizures (FS) is embedded in relationships, educational/professional institutions, culture, and society. Both connection to these broader systems and the quality of these connections, as well as the soundness of each system in and of itself, influence the health and well-being of patients in positive or negative ways. The social aspects of life are important determinants of health and quality of life across the lifespan. The current narrative review brings out several overarching themes in patients with FS. Sections on attachment, marriage, social networking, and stigma highlight the central roles of supportive and affirmative relationships across the lifespan. The section on education underscores the importance of keeping children and youth with FS connected within their school environments, as well as managing any barriers - learning difficulties, school response to FS events, stigma, etc.-that can diminish this connection. Finally, the sections on employment and driving highlight the value of being an active participant in one's society. In summary, FS impacts patients across most social aspects of life domains regardless of age - factors that are important when developing biopsychosocial formulations. This review concludes that the multidisciplinary management of FS requires careful assessment of social aspects of life in patients which can then be targeted for treatment, to improve their quality of life, facilitating recovery, and reducing the risk of relapse.

摘要

作为一个生物系统,人类是一个开放系统,嵌入在更大的系统中——包括家庭、文化和社会政治环境。在这种情况下,功能性癫痫(FS)患者嵌入在关系、教育/专业机构、文化和社会中。与这些更广泛的系统的联系以及这些联系的质量,以及每个系统本身的健全性,以积极或消极的方式影响患者的健康和福祉。生活的社会方面是整个生命周期健康和生活质量的重要决定因素。目前的叙述性评论突出了 FS 患者的几个总体主题。关于依恋、婚姻、社交网络和耻辱感的部分强调了在整个生命周期中支持性和肯定性关系的核心作用。关于教育的部分强调了让患有 FS 的儿童和青少年在学校环境中保持联系的重要性,以及管理任何可能削弱这种联系的障碍——学习困难、学校对 FS 事件的反应、耻辱感等。最后,关于就业和驾驶的部分强调了积极参与社会的价值。总之,FS 影响到患者生活的大多数社会方面,无论年龄大小——这些因素在制定生物心理社会公式时很重要。这篇综述得出的结论是,FS 的多学科管理需要仔细评估患者生活的社会方面,然后可以针对这些方面进行治疗,以提高他们的生活质量,促进康复,并降低复发的风险。

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