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2
Psychological Adaptation to Serious Illness: A Qualitative Study of Culturally Diverse Patients With Advanced Chronic Kidney Disease.对重病的心理适应:对患有晚期慢性肾病的不同文化背景患者的定性研究。
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Burden of Care and Quality of Life Among Caregivers for Adults Receiving Maintenance Dialysis: A Systematic Review.照顾接受维持性透析治疗的成年人的护理人员的负担和生活质量:系统评价。
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Evaluation of Quality of Life and Severity of Depression, Anxiety, and Stress in Patients After Kidney Transplantation.肾移植术后患者生活质量及抑郁、焦虑和压力严重程度的评估。
Transplant Proc. 2018 Jul-Aug;50(6):1733-1737. doi: 10.1016/j.transproceed.2018.04.026. Epub 2018 Apr 12.
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Partners' concerns, needs and expectations in ESRD: results of the CODIT Study.终末期肾病患者伴侣的担忧、需求和期望:CODIT研究结果
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The biopsychosocial impact of end-stage renal disease: the experience of dialysis patients and their partners.终末期肾病的生物心理社会影响:透析患者及其伴侣的经历。
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The marital context of end-stage renal disease: illness intrusiveness and perceived changes in family environment.终末期肾病的婚姻背景:疾病侵扰与家庭环境的感知变化。
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夫妻应对一方身患重病的情况。

Couples Coping With the Serious Illness of One of the Partners.

作者信息

Riazuelo Hélène

机构信息

UFR SPSE, UR 4430 CLIPSYD - A2P, Université Paris Nanterre, Nanterre, France.

Nephrology Psychosomatic Unit, Aura Paris Plaisance (APP), Paris, France.

出版信息

Front Psychol. 2021 Apr 30;12:638938. doi: 10.3389/fpsyg.2021.638938. eCollection 2021.

DOI:10.3389/fpsyg.2021.638938
PMID:33995193
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8121455/
Abstract

Chronic kidney failure is a serious somatic disease. Addressing the issue of living with a chronic disease means fully considering the patients' entourage, their families, and those close to them, especially their children and spouses. : The present paper focuses on the couple's psychological experience when one of them suffers from a chronic disease, in this instance kidney disease. In particular, how is the spouse affected by the treatment provided? The aim is not only to see how care for sick people can be improved, but also, more specifically, how relatives and especially partners can receive attention. : A qualitative approach is not only adopted, being based on the psychotherapeutic follow-up of the partners of patients with chronic kidney disease, but also of the patients themselves, addressing the matter of their life as a couple. Three couples were considered, and two case studies are presented here. The issues that cut across these different situations are examined. : Some couples show considerable resourcefulness. However, over the years, that capacity for adaptation and inventiveness can also be interrupted by the periods of greater suffering and even despair, especially when the somatic pathology becomes chronic. Many spouses talk about how living with a sick partner weighs down on them, causing severe fatigue. Some aspects of the illness can also become traumatic. The disease regularly disrupts the daily life of the couple and the family. This leads to a reworking of family relations. Each couple has its own history with the condition. As it emerges, it can disrupt the bonds of filiation, especially when the illness is hereditary. Making psychological care more accessible to the partners involved constitutes a major challenge for our hospital care systems.

摘要

慢性肾衰竭是一种严重的躯体疾病。解决慢性病患者的生活问题意味着要充分考虑患者的亲友团,他们的家人以及与他们亲近的人,尤其是他们的子女和配偶。:本文聚焦于夫妻一方患有慢性病(在本案例中为肾病)时双方的心理体验。具体而言,配偶如何受到所提供治疗的影响?目的不仅在于了解如何改善对患者的护理,更具体地说,还在于了解亲属尤其是伴侣如何能够得到关注。:不仅采用了定性研究方法,该方法基于对慢性肾病患者伴侣以及患者本人的心理治疗随访,探讨了他们作为夫妻的生活问题。研究了三对夫妻,并在此呈现两个案例。对贯穿这些不同情况的问题进行了审视。:一些夫妻展现出相当的应变能力。然而,多年来,这种适应和创新能力也可能会被更痛苦甚至绝望的时期打断,尤其是当躯体疾病变为慢性病时。许多配偶谈到与患病伴侣共同生活给他们带来的负担,导致严重的疲惫。疾病的某些方面也可能造成创伤。疾病经常扰乱夫妻和家庭的日常生活。这导致家庭关系的重新调整。每对夫妻应对这种情况都有自己的经历。随着病情显现,它可能会破坏亲子关系,尤其是当疾病具有遗传性时。让相关伴侣更容易获得心理护理对我们的医院护理系统构成了一项重大挑战。