National Institute for Health Research Bristol Biomedical Research Centre, University Hospitals of Bristol and Weston NHS Foundation Trust and University of Bristol, Bristol, UK
National Institute for Health Research Bristol Biomedical Research Centre, University Hospitals of Bristol and Weston NHS Foundation Trust and University of Bristol, Bristol, UK.
BMJ Open Diabetes Res Care. 2021 Jun;9(1). doi: 10.1136/bmjdrc-2021-002162.
The coronavirus COVID-19 pandemic has radically compromised healthcare for people living with chronic conditions such as diabetes. Government-imposed restrictions to contain the spread of the virus have forced people to suddenly adjust their lifestyle. This study aimed to capture the impact of the pandemic on people living with diabetes and the views of these individuals on ways in which the information, advice and support they are receiving could be improved.
An online anonymous survey was distributed across the UK during the first lockdown and initial easing. The survey comprised questions about confidence in diabetes self-management, resources used to obtain information, advice and support, and opinions on how these could be improved. Open-ended questions captured subjective experiences.
The survey was completed by 773 adults with diabetes (69.2% type 1, 28.5% type 2). There was notable variability in the impact of the pandemic on confidence in self-management, with confidence having deteriorated most commonly in the ability to take care of own mental well-being (37.0% respondents) and improved most commonly in maintaining a healthy weight (21.1% respondents). 41.2% of respondents living alone reported not receiving any outside support. The quality of information, advice and support received from the healthcare team was rated poorly by 37.2%. Respondents sought greater communication and tailored advice from their care team, clear and consistent information from the government and news channels, and improved understanding of diabetes and its challenges from their personal networks and employers.
Adjusting to the COVID-19 pandemic has strained the mental health and well-being of people living with diabetes. Diabetes care teams must receive assistance to support these individuals without risking further inequalities in access to healthcare. Equipping personal networks and employers with knowledge on diabetes and skills to support self-management may reduce the burden on the National Health Service.
冠状病毒 COVID-19 大流行使患有糖尿病等慢性病的人的医疗保健受到严重影响。为了遏制病毒的传播，政府实施了限制措施，迫使人们突然调整生活方式。本研究旨在了解大流行对糖尿病患者的影响，以及这些患者对他们正在接受的信息、建议和支持的改进方式的看法。
在第一次封锁和初步放宽期间，在英国各地在线匿名调查。该调查包括有关糖尿病自我管理信心、获取信息、建议和支持资源的问题，以及如何改进这些问题的意见。开放性问题则捕捉了主观体验。
该调查由 773 名成年糖尿病患者（69.2%为 1 型糖尿病，28.5%为 2 型糖尿病）完成。大流行对自我管理信心的影响存在显著差异，最常见的是照顾自己心理健康的能力下降（37.0%的受访者），而保持健康体重的能力则有所提高（21.1%的受访者）。41.2%的独居受访者表示没有得到任何外部支持。受访者对从医疗团队获得的信息、建议和支持的质量评价较差，有 37.2%的受访者给出了这样的评价。受访者希望从他们的医疗团队获得更多的沟通和量身定制的建议、来自政府和新闻媒体的清晰和一致的信息，并提高他们的个人网络和雇主对糖尿病及其挑战的理解。
适应 COVID-19 大流行给患有糖尿病的人的心理健康和幸福感带来了压力。糖尿病护理团队必须得到援助，以支持这些个人，而不会进一步加剧获得医疗保健的不平等。让个人网络和雇主了解糖尿病知识并掌握支持自我管理的技能，可能会减轻国民保健制度的负担。
