Internal medicine, Pitié Salpêtrière Hospital, Paris, France.
Vascular medicine, CHU Toulouse, Toulouse, France.
Orphanet J Rare Dis. 2021 Jul 21;16(Suppl 3):311. doi: 10.1186/s13023-021-01922-1.
The aim of this National Diagnostic and Care Protocol (PNDS) is to explain to the professionals involved the current optimal diagnosis and therapeutic management and care approach for a patient with Takayasu's arteritis. Its purpose is to optimize and harmonize the management and follow-up of this rare disease throughout the country. It also identifies pharmaceutical specialties used in an indication not provided for in the Marketing Authorization, as well as the specialties, products or services necessary for the care of patients but not usually paid for or reimbursed.
本国家诊断和护理方案（PNDS）的目的是向相关专业人员解释目前针对 Takayasu 动脉炎患者的最佳诊断和治疗管理及护理方法。其目的是优化和协调全国范围内对这种罕见疾病的管理和随访。它还确定了在药品许可未涵盖的适应症中使用的药品专业知识，以及患者护理所需的专业知识、产品或服务，但通常不支付或报销。
