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为文化和语言多样化(CALD)患者提供门诊癌症护理:一项定性研究。

Providing outpatient cancer care for CALD patients: a qualitative study.

机构信息

Australian Institute of Health Innovation, Macquarie University, Level 6, 75 Talavera Road, North Ryde, NSW, 2109, Australia.

Infant, Child and Adolescent Mental Health Services, Liverpool Hospital, Liverpool, NSW, Australia.

出版信息

BMC Res Notes. 2021 Aug 9;14(1):304. doi: 10.1186/s13104-021-05724-3.

DOI:10.1186/s13104-021-05724-3
PMID:34372907
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8350263/
Abstract

OBJECTIVE

There have been few descriptions of how outpatient cancer care is provided to patients from culturally and linguistically diverse (CALD) communities. As populations who experience disparities in cancer care access and outcomes, deeper understanding is needed to help identify those factors which can shape the receipt of multidisciplinary care in ambulatory settings. This paper reports on data collected and analysed as part of a multicentre characterisation of care in Australian public hospital cancer outpatient clinics (OPCs).

RESULTS

Analysis of data from our ethnographic study of four OPCs identified three themes: "Identifying CALD patient language-related needs"; "Capacity and resources to meet CALD patient needs", and "Making it work for CALD communities." The care team comprises not only clinicians but also families and non-clinical staff; OPCs serve as "touchpoints" facilitating access to a range of therapeutic services. The findings highlight the potential challenges oncology professionals negotiate in providing care to CALD communities and the ways in which clinicians adapt their practices, formulate strategies and use available resources to support care delivery.

摘要

目的

针对来自文化和语言多样化(CALD)社区的患者,门诊癌症护理的提供方式鲜有描述。作为在癌症护理的可及性和结果方面存在差异的人群,需要更深入的了解,以帮助确定那些可以影响多学科团队在门诊环境中提供护理的因素。本文报告了作为澳大利亚公立医院癌症门诊诊所(OPC)多中心特征描述的一部分所收集和分析的数据。

结果

对我们在四个 OPC 进行的人种学研究数据的分析确定了三个主题:“确定 CALD 患者语言相关需求”、“满足 CALD 患者需求的能力和资源”以及“为 CALD 社区服务”。护理团队不仅包括临床医生,还包括患者家属和非临床人员;OPC 充当“接触点”,便于患者获得一系列治疗服务。研究结果突出了肿瘤学专业人员在为 CALD 社区提供护理时需要应对的潜在挑战,以及临床医生调整其做法、制定策略和利用现有资源来支持护理提供的方式。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6017/8351101/07b2e8f915f7/13104_2021_5724_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6017/8351101/07b2e8f915f7/13104_2021_5724_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6017/8351101/07b2e8f915f7/13104_2021_5724_Fig1_HTML.jpg

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本文引用的文献

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2
Telemedicine for cancer patients during COVID-19 pandemic: between threats and opportunities.新冠疫情期间癌症患者的远程医疗:机遇与挑战并存
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What is multidisciplinary cancer care like in practice? a protocol for a mixed-method study to characterise ambulatory oncology services in the Australian public sector.
多学科癌症护理在实际中是怎样的?一项混合方法研究的方案,旨在描述澳大利亚公共部门的门诊肿瘤学服务。
BMJ Open. 2019 Oct 10;9(10):e031179. doi: 10.1136/bmjopen-2019-031179.
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What information do patients want across their cancer journeys? A network analysis of cancer patients' information needs.患者在癌症治疗过程中需要哪些信息?一项癌症患者信息需求的网络分析。
Cancer Med. 2019 Jan;8(1):155-164. doi: 10.1002/cam4.1915. Epub 2018 Dec 7.
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The LEAD study protocol: a mixed-method cohort study evaluating the lung cancer diagnostic and pre-treatment pathways of patients from Culturally and Linguistically Diverse (CALD) backgrounds compared to patients from Anglo-Australian backgrounds.LEAD 研究方案:一项混合方法队列研究,评估与 Anglo-Australian 背景患者相比,文化和语言多样化(CALD)背景患者的肺癌诊断和治疗前途径。
BMC Cancer. 2018 Jul 21;18(1):754. doi: 10.1186/s12885-018-4671-4.
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Defining success factors to describe coordinated care in cancer.定义成功因素,以描述癌症的协调护理。
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Perspectives of oncology nurses and oncologists regarding barriers to working with patients from a minority background: Systemic issues and working with interpreters.肿瘤护理人员和肿瘤学家对与少数族裔背景患者合作的障碍的看法:系统性问题及与口译员合作的情况。
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