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新冠疫情对多发性硬化症患者及其照顾者疲劳、自我同情、身心健康的继发性影响:特鲁埃尔研究

Secondary Impacts of COVID-19 Pandemic in Fatigue, Self-Compassion, Physical and Mental Health of People with Multiple Sclerosis and Caregivers: The Teruel Study.

作者信息

Giménez-Llort Lydia, Martín-González Juan José, Maurel Sara

机构信息

Department of Psychiatry and Forensic Medicine, Medical Psychology Unit, School of Medicine, Universitat Autònoma de Barcelona, 08193 Barcelona, Spain.

Institut de Neurociències, Universitat Autònoma de Barcelona, 08193 Barcelona, Spain.

出版信息

Brain Sci. 2021 Sep 18;11(9):1233. doi: 10.3390/brainsci11091233.

DOI:10.3390/brainsci11091233
PMID:34573254
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8467200/
Abstract

The secondary impacts of the COVID-19 pandemic are distress triggers and risk factors for mental health. Conversely, self-compassion skills and compassionate thoughts/behaviors towards suffering may contribute to their alleviation. Both psychological constructs are interrelated in life-threatening diseases such as multiple sclerosis (MS). The Teruel Study retrospectively evaluated the impact of strict confinement on the 44 people with MS of this Spanish province and 24 caregivers, specifically assessing (1) fears and perceptions; (2) self-compassion (people with MS) and compassion (caregivers); (3) physical and mental health, and fatigue. Despite better housing conditions, people with MS considered confinement very difficult to handle, more than their caregivers, but they were less afraid of COVID-19 and worsening of MS. Still, they recognized worse health than before confinement. Reclusion and lack of walks were the worst of confinement. Caregivers also referred to lack of leisure and uncertainty-fear. All agreed the best was staying with the family, but some found 'nothing' positive. Self-compassion remained moderate-high and strongly correlated with their moderate levels of social function, vitality, physical role, and global health. Physical and cognitive fatigue scores were high, and self-compassion negatively correlated with them, explaining a 19% variance in global health. The high compassion of the caregivers did not correlate with any variable.

摘要

新冠疫情的次生影响是心理健康问题的诱发因素和风险因素。相反,自我同情技能以及对苦难的同情性思维/行为可能有助于缓解这些问题。在诸如多发性硬化症(MS)等危及生命的疾病中,这两种心理结构是相互关联的。特鲁埃尔研究回顾性评估了严格封锁对该西班牙省份44名多发性硬化症患者和24名护理人员的影响,具体评估了:(1)恐惧和认知;(2)自我同情(多发性硬化症患者)和同情(护理人员);(3)身心健康和疲劳状况。尽管居住条件有所改善,但多发性硬化症患者认为封锁比护理人员更难应对,不过他们对新冠疫情和病情恶化的恐惧较小。尽管如此,他们承认自己的健康状况比封锁前更差。隔离和缺乏散步是封锁最糟糕的方面。护理人员也提到了缺乏休闲和对不确定性的恐惧。所有人都认为最好的是与家人在一起,但有些人觉得没有任何积极的方面。自我同情程度仍处于中高水平,且与他们适度的社会功能、活力、身体功能和总体健康状况密切相关。身体和认知疲劳得分较高,自我同情与它们呈负相关,这解释了总体健康状况中19%的差异。护理人员的高度同情与任何变量均无关联。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4653/8467200/ca061b826fc8/brainsci-11-01233-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4653/8467200/9199a3745a3b/brainsci-11-01233-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4653/8467200/2e94075e39c3/brainsci-11-01233-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4653/8467200/ca061b826fc8/brainsci-11-01233-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4653/8467200/9199a3745a3b/brainsci-11-01233-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4653/8467200/2e94075e39c3/brainsci-11-01233-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4653/8467200/ca061b826fc8/brainsci-11-01233-g003.jpg

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