Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
Penn Program on Precision Medicine for the Brain, Penn Memory Center, Philadelphia, Pennsylvania, USA.
J Am Geriatr Soc. 2021 Dec;69(12):3617-3622. doi: 10.1111/jgs.17484. Epub 2021 Oct 10.
This case report describes the ethical implications of paradoxical lucidity in persons with severe stage dementia. Paradoxical lucidity describes an episode of unexpected communication or connectedness in a person who is believed to be noncommunicative due to a progressive and pathological process that causes dementia. A caregiver who witnesses an event of paradoxical lucidity may experience it as ethically and emotionally transformative. We provide an ethical framework for addressing this event in clinical practice. The framework addresses clinician interactions with the patient, caregiver, and family to improve understanding of paradoxical lucidity and to enhance patient care, caregiver well-being, and decision-making. Participants for this case study consented to having the case published. Participant names are changed to protect confidentiality.
本病例报告描述了严重痴呆阶段患者出现矛盾意识清晰所涉及的伦理问题。矛盾意识清晰是指一个人由于进行性和病理性过程导致痴呆而被认为无法进行沟通,但却突然出现了意想不到的交流或联系。目睹这种矛盾意识清晰事件的护理人员可能会认为这在伦理和情感上具有变革性。我们为临床实践中处理此类事件提供了一个伦理框架。该框架涉及临床医生与患者、护理人员和家属的互动,以增进对矛盾意识清晰的理解,并加强患者护理、护理人员的幸福感和决策制定。本病例研究的参与者同意将案例发表。为了保护隐私,参与者的姓名已更改。