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本文引用的文献

1
Ageing, demographics, and heart failure.衰老、人口统计学与心力衰竭
Eur Heart J Suppl. 2019 Dec;21(Suppl L):L4-L7. doi: 10.1093/eurheartj/suz235. Epub 2019 Dec 23.
2
Self care interventions to advance health and wellbeing: a conceptual framework to inform normative guidance.自我保健干预措施促进健康和幸福:为规范性指导提供信息的概念框架。
BMJ. 2019 Apr 1;365:l688. doi: 10.1136/bmj.l688.
3
Trends in survival after a diagnosis of heart failure in the United Kingdom 2000-2017: population based cohort study.2000-2017 年英国心力衰竭诊断后生存率趋势:基于人群的队列研究。
BMJ. 2019 Feb 13;364:l223. doi: 10.1136/bmj.l223.
4
Perceived Social Support in Persons With Heart Failure Living With an Implantable Cardioverter Defibrillator: A Cross-sectional Explorative Study.心力衰竭合并植入式心脏转复除颤器患者感知社会支持的横断面探索性研究。
J Cardiovasc Nurs. 2018 Nov/Dec;33(6):E1-E8. doi: 10.1097/JCN.0000000000000523.
5
Cost-of-illness studies in heart failure: a systematic review 2004-2016.2004 - 2016年心力衰竭疾病成本研究:一项系统综述
BMC Cardiovasc Disord. 2018 May 2;18(1):74. doi: 10.1186/s12872-018-0815-3.
6
Comorbidity health pathways in heart failure patients: A sequences-of-regressions analysis using cross-sectional data from 10,575 patients in the Swedish Heart Failure Registry.心力衰竭患者的合并症健康途径:使用来自瑞典心力衰竭登记处的 10575 名患者的横断面数据进行的序列回归分析。
PLoS Med. 2018 Mar 27;15(3):e1002540. doi: 10.1371/journal.pmed.1002540. eCollection 2018 Mar.
7
Enhancing Lifestyle Change in Cardiac Patients Through the Do CHANGE System ("Do Cardiac Health: Advanced New Generation Ecosystem"): Randomized Controlled Trial Protocol.通过“做改变”系统(“心脏健康:先进的新一代生态系统”)增强心脏病患者的生活方式改变:随机对照试验方案。
JMIR Res Protoc. 2018 Feb 8;7(2):e40. doi: 10.2196/resprot.8406.
8
Self-care and health-related quality of life in chronic heart failure: A longitudinal analysis.慢性心力衰竭中的自我护理与健康相关生活质量:一项纵向分析。
Eur J Cardiovasc Nurs. 2017 Oct;16(7):605-613. doi: 10.1177/1474515117702021. Epub 2017 Mar 23.
9
Global Public Health Burden of Heart Failure.心力衰竭的全球公共卫生负担。
Card Fail Rev. 2017 Apr;3(1):7-11. doi: 10.15420/cfr.2016:25:2.
10
Role of nurses in supporting patients to self-manage chronic conditions.护士在支持患者自我管理慢性病方面的作用。
Nurs Stand. 2017 May 17;31(38):42-46. doi: 10.7748/ns.2017.e10742.

心力衰竭患者自我护理的障碍:一项定性研究。

Barriers to Self-care Among Patients with Heart Failure: A Qualitative Study.

作者信息

Negarandeh Reza, Aghajanloo Ali, Seylani Khatereh

机构信息

Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Tehran University of Medical Sciences, Iran.

Critical Care Nursing Department, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.

出版信息

J Caring Sci. 2020 Oct 20;10(4):196-204. doi: 10.34172/jcs.2020.026. eCollection 2021 Nov.

DOI:10.34172/jcs.2020.026
PMID:34849365
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8609122/
Abstract

Heart failure is the most prevalent cardiovascular disease. It is the end stage of most cardiovascular diseases and is characterized by the reduced ability of the heart to pump enough blood to fulfill the metabolic needs of the body. Self-care is the basis of the management of chronic diseases such as heart failure. The aim of this study was to explore the barriers to self-care among patients with heart failure. This was a qualitative content analysis. Participants were fourteen patients with heart failure and three healthcare providers who were purposively recruited from cardiac care centers in Zanjan, Iran. Data were collected through in-depth semi-structured interviews and were analyzed through the conventional qualitative content analysis approach proposed by Elo and Kyngäs. Self-care barriers -care among patients with HF were categorized into three main categories, namely personal factors, disease burden, and inefficient support system. Each category had three subcategories which were respectively lack of self-care knowledge, heart failure-related negative emotions, the difficulty of changing habits, progressive physical decline, comorbid conditions, financial strain, inadequate social support, healthcare providers' inattention to self-care, and limited access to healthcare providers. Patients with heart failure face different personal, disease-related, and support-related barriers to self-care. Based on these barriers, healthcare providers can develop interventions for promoting self-care among patients with heart failure.

摘要

心力衰竭是最常见的心血管疾病。它是大多数心血管疾病的终末期,其特征是心脏泵血能力下降,无法满足身体的代谢需求。自我护理是心力衰竭等慢性病管理的基础。本研究的目的是探讨心力衰竭患者自我护理的障碍。这是一项定性内容分析。参与者包括14名心力衰竭患者和3名医疗服务提供者,他们是从伊朗赞詹的心脏护理中心有目的地招募的。数据通过深入的半结构化访谈收集,并通过Elo和Kyngäs提出的传统定性内容分析方法进行分析。心力衰竭患者的自我护理障碍分为三大类,即个人因素、疾病负担和低效的支持系统。每一类又有三个子类别,分别是缺乏自我护理知识、与心力衰竭相关的负面情绪、改变习惯的困难、身体逐渐衰退、合并症、经济压力、社会支持不足、医疗服务提供者对自我护理的忽视以及获得医疗服务提供者的机会有限。心力衰竭患者在自我护理方面面临不同的个人、疾病相关和支持相关的障碍。基于这些障碍,医疗服务提供者可以制定干预措施,以促进心力衰竭患者的自我护理。