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ARAMIS(美国风湿病协会医学信息系统)。一个典型的国家级慢性病数据库。

ARAMIS (the American Rheumatism Association Medical Information System). A prototypical national chronic-disease data bank.

作者信息

Fries J F, McShane D J

出版信息

West J Med. 1986 Dec;145(6):798-804.

Abstract

ARAMIS is a prototype of a national chronic-disease data-bank system consisting of parallel, longitudinal, clinical data sets from 17 diverse locations; the data describe the courses of thousands of patients with rheumatic disease followed over many years. Chronic-disease data-bank systems include the data themselves, protocols to ensure their quality, computer systems for their manipulation, statistical procedures for analysis and an appropriately skilled staff. Such a data resource facilitates analyzing long-term health outcomes and the factors associated with particular outcomes. Such systems are mandated by the overwhelming prevalence of chronic illness; the variability, complexity and uniqueness of a patient's course; the difficulties of traditional randomized approaches in these areas, and the time span required for studying these problems.

摘要

ARAMIS是一个国家慢性病数据库系统的原型,它由来自17个不同地点的平行、纵向临床数据集组成;这些数据描述了数千名风湿性疾病患者多年来的病程。慢性病数据库系统包括数据本身、确保数据质量的方案、用于处理数据的计算机系统、分析用的统计程序以及技术娴熟的工作人员。这样的数据资源有助于分析长期健康结果以及与特定结果相关的因素。慢性病的普遍流行、患者病程的变异性、复杂性和独特性、这些领域传统随机方法的困难以及研究这些问题所需的时间跨度,都要求建立这样的系统。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/13e5/1307153/f2aa1700a1f4/westjmed00160-0066-a.jpg

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