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针对智力或发育障碍患者家庭照顾者的行为技能培训:文献系统综述

Behavior skills training for family caregivers of people with intellectual or developmental disabilities: a systematic review of literature.

作者信息

Sun Xiaohui

机构信息

Tizard Centre, University of Kent, Canterbury, Kent, UK.

出版信息

Int J Dev Disabil. 2020 Jul 22;68(3):247-273. doi: 10.1080/20473869.2020.1793650. eCollection 2022.

Abstract

People with intellectual or developmental disabilities (IDDs) face lifelong challenges in areas such as self-care, learning and socializing abilities. Having such individuals at home brings family caregivers extra stress, especially when support is insufficient. Because of the inadequacy of professional support available globally, the need to increase the ability of the caregivers to provide effective support is evident. Behavior skills training (BST), an approach consisting of instruction, modelling, rehearsal, and feedback, has been used in numerous studies to train caregivers in necessary skills to help their family members with IDDs. This study conducted a systematic review of past literatures, wherein BST was used to train family caregivers of individuals with IDDs. Seventeen relevant studies were summarized according to their countries, participant characteristics, training focus, intervention details, and outcomes. Outcomes revealed that BST had been used to train caregivers of varying demographics, various target skills (e.g. discrete trial training, incidental training, etc.), order of delivery, and sometimes the introduction of novel components. Most studies showed an improvement for both caregivers and the individuals with IDDs. However, some studies did not present desired outcomes in relation to the individuals. Possible reasons and future measures were also discussed in this review.

摘要

智力或发育障碍(IDD)患者在自我护理、学习和社交能力等方面面临终身挑战。家中有这样的人会给家庭照顾者带来额外压力,尤其是在支持不足的时候。由于全球范围内专业支持的不足,提高照顾者提供有效支持的能力的需求显而易见。行为技能训练(BST)是一种由指导、示范、演练和反馈组成的方法,已在众多研究中用于培训照顾者掌握帮助其患有IDD的家庭成员所需的技能。本研究对过去的文献进行了系统综述,其中行为技能训练被用于培训IDD患者的家庭照顾者。根据相关研究的国家、参与者特征、培训重点、干预细节和结果总结了17项研究。结果显示,行为技能训练已被用于培训不同人口统计学特征的照顾者、各种目标技能(如离散试验训练、附带训练等)、交付顺序,有时还引入了新的组成部分。大多数研究表明照顾者和IDD患者都有改善。然而,一些研究并未呈现出与患者相关的预期结果。本综述还讨论了可能的原因和未来措施。

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