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本文引用的文献

1
The impact of behavioural skills training on the knowledge, skills and well-being of front line staff in the intellectual disability sector: a clustered randomised control trial.行为技能训练对智障领域一线工作人员知识、技能和福祉的影响:一项整群随机对照试验。
J Intellect Disabil Res. 2019 Nov;63(11):1291-1304. doi: 10.1111/jir.12630. Epub 2019 May 20.
2
Efficacy of parent training incorporated in behavioral sleep interventions for children with autism spectrum disorder and/or intellectual disabilities: a systematic review.行为睡眠干预中纳入家长培训对自闭症谱系障碍和/或智力残疾儿童的疗效:系统评价。
Sleep Med. 2019 Jan;53:141-152. doi: 10.1016/j.sleep.2018.08.034. Epub 2018 Oct 11.
3
Response to bullying (RTB): Behavioral skills and in situ training for individuals diagnosed with intellectual disabilities.应对欺凌行为(RTB):针对被诊断为智力障碍个体的行为技能和现场培训。
J Appl Behav Anal. 2019 Feb;52(1):73-83. doi: 10.1002/jaba.501. Epub 2018 Aug 31.
4
Engaging with and navigating limbo: Lived experiences of siblings of adults with autism spectrum disorders.置身于边缘状态并应对其中:自闭症谱系障碍成年患者兄弟姐妹的生活经历。
J Appl Res Intellect Disabil. 2018 Nov;31(6):1144-1153. doi: 10.1111/jar.12474. Epub 2018 Jun 28.
5
Parent-mediated intervention training delivered remotely for children with autism spectrum disorder (ASD) has preliminary evidence for parent intervention fidelity and improving parent knowledge and children's social behaviour and communication skills.为自闭症谱系障碍(ASD)儿童提供的远程家长介导干预训练,在家长干预保真度以及提高家长知识水平和儿童社交行为及沟通技能方面有初步证据。
Aust Occup Ther J. 2018 Jun;65(3):245-246. doi: 10.1111/1440-1630.12481. Epub 2018 May 21.
6
An Evaluation of Behavioral Skills Training for Teaching Caregivers How to Support Social Skill Development in Their Child with Autism Spectrum Disorder.自闭症谱系障碍儿童社交技能发展的行为技能训练教学: caregiver 的评估。
J Autism Dev Disord. 2018 Jun;48(6):1957-1970. doi: 10.1007/s10803-017-3455-z.
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Increasing appropriate conversation skills using a behavioral skills training package for adults with intellectual disability and autism spectrum disorder.使用行为技能训练包提高智障和自闭症谱系障碍成年人的适当对话技能。
J Intellect Disabil. 2019 Dec;23(4):567-580. doi: 10.1177/1744629517750744. Epub 2018 Jan 1.
8
Training Parents in Saudi Arabia to Implement Discrete Trial Teaching with their Children with Autism Spectrum Disorder.在沙特阿拉伯培训家长对其患有自闭症谱系障碍的孩子实施离散单元教学
Behav Anal Pract. 2017 Jan 10;10(4):402-406. doi: 10.1007/s40617-016-0167-3. eCollection 2017 Dec.
9
Parent-implemented behavioral skills training of social skills.家长实施的社交技能行为技能训练。
J Appl Behav Anal. 2017 Oct;50(4):805-818. doi: 10.1002/jaba.411. Epub 2017 Sep 20.
10
Effectiveness of speech therapy in adults with intellectual disabilities.言语治疗对成年智障人士的有效性。
J Appl Res Intellect Disabil. 2018 Mar;31(2):236-248. doi: 10.1111/jar.12384. Epub 2017 Jul 10.

针对智力或发育障碍患者家庭照顾者的行为技能培训:文献系统综述

Behavior skills training for family caregivers of people with intellectual or developmental disabilities: a systematic review of literature.

作者信息

Sun Xiaohui

机构信息

Tizard Centre, University of Kent, Canterbury, Kent, UK.

出版信息

Int J Dev Disabil. 2020 Jul 22;68(3):247-273. doi: 10.1080/20473869.2020.1793650. eCollection 2022.

DOI:10.1080/20473869.2020.1793650
PMID:35603000
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9122419/
Abstract

People with intellectual or developmental disabilities (IDDs) face lifelong challenges in areas such as self-care, learning and socializing abilities. Having such individuals at home brings family caregivers extra stress, especially when support is insufficient. Because of the inadequacy of professional support available globally, the need to increase the ability of the caregivers to provide effective support is evident. Behavior skills training (BST), an approach consisting of instruction, modelling, rehearsal, and feedback, has been used in numerous studies to train caregivers in necessary skills to help their family members with IDDs. This study conducted a systematic review of past literatures, wherein BST was used to train family caregivers of individuals with IDDs. Seventeen relevant studies were summarized according to their countries, participant characteristics, training focus, intervention details, and outcomes. Outcomes revealed that BST had been used to train caregivers of varying demographics, various target skills (e.g. discrete trial training, incidental training, etc.), order of delivery, and sometimes the introduction of novel components. Most studies showed an improvement for both caregivers and the individuals with IDDs. However, some studies did not present desired outcomes in relation to the individuals. Possible reasons and future measures were also discussed in this review.

摘要

智力或发育障碍(IDD)患者在自我护理、学习和社交能力等方面面临终身挑战。家中有这样的人会给家庭照顾者带来额外压力,尤其是在支持不足的时候。由于全球范围内专业支持的不足,提高照顾者提供有效支持的能力的需求显而易见。行为技能训练(BST)是一种由指导、示范、演练和反馈组成的方法,已在众多研究中用于培训照顾者掌握帮助其患有IDD的家庭成员所需的技能。本研究对过去的文献进行了系统综述,其中行为技能训练被用于培训IDD患者的家庭照顾者。根据相关研究的国家、参与者特征、培训重点、干预细节和结果总结了17项研究。结果显示,行为技能训练已被用于培训不同人口统计学特征的照顾者、各种目标技能(如离散试验训练、附带训练等)、交付顺序,有时还引入了新的组成部分。大多数研究表明照顾者和IDD患者都有改善。然而,一些研究并未呈现出与患者相关的预期结果。本综述还讨论了可能的原因和未来措施。