Gielen Joris, Kashyap Komal, Singh Suraj Pal, Bhatnagar Sushma, Chaturvedi Santosh K
Center for Global Health Ethics, Duquesne University, Pitsburgh, PA, United States.
Department of Onco-anesthesia and Palliative Medicine, Dr. B.R. Ambedkar Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India.
Indian J Palliat Care. 2022 Jan-Mar;28(1):13-20. doi: 10.25259/IJPC_50_21. Epub 2022 Feb 1.
Spirituality has an impact on the quality of life of palliative care patients and it influences the way in which they experience their disease. Spiritual distress is a common issue among palliative care patients in India that is best assessed through a tool specifically designed for them. This study presents the findings of a psychometric assessment of SpiDiscI: a 16-item spiritual distress scale for Hindi speaking palliative care patients in India.
This study used a non-experimental cross-sectional sample survey design. 400 cancer patients undergoing pain treatment at the pain and palliative care unit of a tertiary cancer hospital in New Delhi enrolled in the study and completed the study's questionnaire. The questionnaire contained a section on demographic information, a numerical rating scale (NRS) for pain, SpiDiscI, FACIT-Sp-12, and WHOQOL-BREF. A subset of 50 patients with stable pain completed SpiDiscI a 2 time 2 weeks after the first administration of the scale to assess test-retest reliability.
The scale's internal consistency is very good (Cronbach's Alpha 0.85). Spiritual distress scores ranged from 0 to 93.8 (mean 37.1, SD 23.6). Significant negative correlations between SpiDiScI and both FACIT-Sp-12 (R = -0.16, = 0.001) and WHOQOL-BREF (R = -0.27, < 0.001) confirmed convergent validity. There was no significant association with NRS pain scores (R = 0.06, = 0.224). The highly significant association (R = 0.75, < 0.001) of the scores on assessments 2 weeks apart confirmed test-retest reliability.
SpiDiScI is a reliable and valid measure to assess spiritual distress in research among Hindi speaking palliative care patients in India.
精神性对姑息治疗患者的生活质量有影响，且会影响他们体验疾病的方式。精神痛苦是印度姑息治疗患者中常见的问题，通过专门为他们设计的工具进行评估最为合适。本研究呈现了SpiDiscI的心理测量评估结果：这是一个针对印度说印地语的姑息治疗患者的16项精神痛苦量表。
本研究采用非实验性横断面抽样调查设计。400名在新德里一家三级癌症医院的疼痛与姑息治疗科接受疼痛治疗的癌症患者参与了本研究并完成了研究问卷。问卷包含人口统计学信息部分、疼痛数字评定量表（NRS）、SpiDiscI、FACIT-Sp-12和WHOQOL-BREF。50名疼痛稳定的患者在首次使用该量表两周后再次完成SpiDiscI，以评估重测信度。
该量表的内部一致性非常好（克朗巴哈系数α为0.85）。精神痛苦得分范围为0至93.8（均值37.1，标准差23.6）。SpiDiScI与FACIT-Sp-12（R = -0.16，P = 0.001）和WHOQOL-BREF（R = -0.27，P < 0.001）之间的显著负相关证实了收敛效度。与NRS疼痛评分无显著关联（R = 0.06，P = 0.224）。相隔两周的评估得分之间的高度显著关联（R = 0.75，P < 0.001）证实了重测信度。
SpiDiScI是评估印度说印地语的姑息治疗患者研究中精神痛苦的可靠且有效的测量工具。
