Department of Onco-Anaesthesia & Palliative Medicine, Dr. B.R. Ambedkar Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India.
Vidhi Center for Legal Policy, New Delhi, India.
Indian J Med Res. 2022 Feb;155(2):232-242. doi: 10.4103/ijmr.IJMR_902_21.
India has a high share in the global burden of chronic terminal illnesses. However, there is a lack of a uniform system in providing better end-of-life care (EOLC) for large patients in their terminal stage of life. Institutional policies can be a good alternative as there is no national level policy for EOLC. This article describes the important aspects of the EOLC policy at one of the tertiary care institutes of India. A 15 member institutional committee including representatives from various departments was formed to develop this institutional policy. This policy document is aimed at helping to recognize the potentially non-beneficial or harmful treatments and provide transparency and accountability of the process of limitation of treatment through proper documentation that closely reflects the Indian legal viewpoint on this matter. Four steps are proposed in this direction: (i) recognition of a potentially non-beneficial or harmful treatment by the physicians, (ii) consensus among all the caregivers on a potentially non-beneficial or harmful treatment and initiation of the best supportive care pathway, (iii) initiation of EOLC pathways, and (iv) symptom management and ongoing supportive care till death. The article also focuses on the step-by-step process of formulation of this institutional policy, so that it can work as a blueprint for other institutions of our country to identify the infrastructural needs and resources and to formulate their own policies.
印度在全球慢性终末期疾病负担中占比很高。然而,在为生命终末期的大量患者提供更好的临终关怀 (EOLC) 方面,缺乏统一的系统。由于没有国家层面的 EOLC 政策,机构政策可以作为一个很好的替代方案。本文描述了印度一家三级护理机构的 EOLC 政策的重要方面。成立了一个由 15 名成员组成的机构委员会,包括来自各个部门的代表,以制定这项机构政策。这份政策文件旨在帮助识别潜在的无益或有害治疗,并通过适当的文件记录提供治疗限制过程的透明度和问责制,这些文件记录紧密反映了印度在这方面的法律观点。为此提出了四个步骤:(i) 医生识别潜在的无益或有害治疗,(ii) 所有护理人员就潜在的无益或有害治疗达成共识并启动最佳支持性护理途径,(iii) 启动 EOLC 途径,以及 (iv) 症状管理和持续支持直至死亡。本文还重点介绍了制定这项机构政策的逐步过程,以便为我国的其他机构提供蓝图,以确定基础设施需求和资源,并制定自己的政策。