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患者与公众参与的艺术:探索通过基于艺术的社区工作坊研究和减少空气污染的方法——一篇反思性论文。

The art of Patient and Public Involvement: exploring ways to research and reduce air pollution through art-based community workshops - a reflective paper.

作者信息

Islam Shahid, Rashid Rukhsana, Bryant Maria, Schofield Holly, McEachan Rosemary R C

机构信息

ActEarly Consortium, Bradford Institute for Health Research, BRADFORD, West Yorkshire, BD9 6DA, UK.

Born in Bradford, Bradford Institute for Health Research, BRADFORD, West Yorkshire, BD9 6DA, UK.

出版信息

Wellcome Open Res. 2022 May 26;7:162. doi: 10.12688/wellcomeopenres.17886.1. eCollection 2022.

Abstract

In this reflective paper we outline and discuss our art-based Patient and Public Involvement (PPI) approach.  This exercise held two broad objectives. Firstly, to assist policy makers in understanding the types of interventions communities will find acceptable to address the problem of poor air quality, and secondly, to ascertain community views about our research plans to explore the impact of the planned interventions on neighbourhoods.  We reflect on both our approach and the emergent conversations from the PPI activity.  Attendees contributed to the process and stressed the importance of not burdening poor neighbourhoods with costly charges as that would ameliorate one health problem but generate others as a consequence of additional financial burden.  Equally, they stressed the need to conduct research on matters which they could connect with such as the impact of clean air plans on young children and how information about air pollution is disseminated in their neighbourhoods as and when research findings emerge.  This paper offers a conceptual analysis of the art-based PPI method and uniquely draws a connection to the philosophical traditions of Ludwig Wittgenstein.  Specifically, we demonstrate how art is conducive to creating a dialogue which is specifically helpful for PPI purposes for both researchers and implementers, and conversely, why traditional conversational approaches may have fallen short of the adequacy mark in this regard.

摘要

在这篇反思性论文中,我们概述并讨论了我们基于艺术的患者及公众参与(PPI)方法。这项活动有两个主要目标。其一,帮助政策制定者了解社区能够接受的解决空气质量差问题的干预措施类型;其二,确定社区对我们研究计划的看法,该计划旨在探究拟议干预措施对社区的影响。我们对我们的方法以及PPI活动中出现的讨论进行反思。参与者为这一过程做出了贡献,并强调了不给贫困社区带来高昂费用负担的重要性,因为这虽然能缓解一个健康问题,但会因额外的经济负担而产生其他问题。同样,他们强调有必要就他们能够联系起来的事项开展研究,比如清洁空气计划对幼儿的影响,以及研究结果出现时,空气污染信息在他们社区是如何传播的。本文对基于艺术的PPI方法进行了概念分析,并独特地将其与路德维希·维特根斯坦的哲学传统联系起来。具体而言,我们展示了艺术如何有助于创建一种对话,这种对话对研究人员和实施者的PPI目的特别有帮助,反之,为什么传统的对话方法在这方面可能未达到充分的标准。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3ca6/9396111/37d938d2f79a/wellcomeopenres-7-19816-g0000.jpg

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