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当“关怀文化”相遇:英国动物研究与患者参与交叉点上的纠葛与责任

When 'cultures of care' meet: entanglements and accountabilities at the intersection of animal research and patient involvement in the UK.

作者信息

Gorman Richard, Davies Gail

机构信息

Department of Geography, University of Exeter, Exeter, UK.

出版信息

Soc Cult Geogr. 2020 Sep 3;24(1):121-139. doi: 10.1080/14649365.2020.1814850. eCollection 2023.

Abstract

A good culture of care, empowering individuals within organisations to care and reflecting wider social expectations about care, is now a well-documented aspiration in managing practices of laboratory animal research and establishing priorities for patient and public health. However, there is little attention to how different institutional cultures of care interact and what happens to the accountabilities of caring roles and the entanglements of caring practices when institutional cultures meet. Drawing on research exploring the increasing practices of patient and public involvement (PPI) within animal research in the UK, we identify three ways in which cultures of care are changing in encounters between biomedical researchers and people affected by health conditions. Firstly, patient involvement in animal research brings additional bodies to within research facilities. Secondly, patient and public groups are seen as an increasingly important group to to. Thirdly, involvement brings opportunities for patients and publics to for both human and animals. However, more attention is required to understand how shifts towards cultures of care distribute power and responsibility to care within institutions and at their boundaries, where responsibilities to care may be disconnected from the power to effect meaningful changes.

摘要

良好的关怀文化,即赋予组织内的个人关怀能力并反映更广泛的社会关怀期望,如今已成为实验室动物研究管理实践以及确定患者和公众健康优先事项方面有充分记录的愿望。然而,很少有人关注不同的机构关怀文化如何相互作用,以及当机构文化相遇时,关怀角色的责任以及关怀实践的纠葛会发生什么。借鉴探索英国动物研究中患者和公众参与(PPI)日益增多的实践的研究,我们确定了生物医学研究人员与受健康状况影响的人相遇时关怀文化发生变化的三种方式。首先,患者参与动物研究将更多的人带入了研究设施。其次,患者和公众群体被视为越来越重要的需要与之交流的群体。第三,参与为患者和公众带来了为人类和动物争取权益的机会。然而,需要更多关注来理解向关怀文化的转变如何在机构内部及其边界分配关怀的权力和责任,在这些地方,关怀的责任可能与实现有意义变革的权力脱节。

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