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将不同人群纳入健康研究的挑战:一种嵌入式社会科学视角。

The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.

作者信息

Outram Simon M, Ackerman Sara L, Norstad Matthew, Koenig Barbara

机构信息

Program in Bioethics, Institute for Health & Aging, University of California, San Francisco, California, USA.

Department of Social & Behavioral Sciences, University of California, San Francisco, California, USA.

出版信息

New Genet Soc. 2022;41(3):216-226. doi: 10.1080/14636778.2022.2115349. Epub 2022 Sep 6.

Abstract

Addressing health disparities has become a central remit for conducting health research. In the following paper, we explore the conceptual and methodological challenges posed by the call to recruit medically underserved populations. This exploration of challenges is undertaken from the perspective of social science researchers embedded in a large within a clinical genomics research study. We suggest that these challenges are found in respect to the development of recruiting strategies, analysis of the data in respect to understanding and interpreting the experiences of being medically underserved, and in comparing the experiences of being medically underserved compared to not being underserved. By way of conclusion, it is argued that there is important role for social scientists with large health research studies which, if achieved successfully, can benefit study teams and society as a whole.

摘要

解决健康差异问题已成为开展健康研究的核心任务。在以下论文中,我们探讨了招募医疗服务不足人群这一要求所带来的概念和方法上的挑战。这种对挑战的探索是从参与大型临床基因组学研究的社会科学研究人员的角度进行的。我们认为,这些挑战体现在招募策略的制定、关于理解和解读医疗服务不足经历的数据的分析,以及比较医疗服务不足与非医疗服务不足的经历等方面。最后得出结论,社会科学家在大型健康研究中可发挥重要作用,若能成功实现,将使研究团队和整个社会受益。

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