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为膝关节骨关节炎患者共同设计基于网络的“我的膝盖”教育与自我管理工具包。

Co-design of the web-based 'My Knee' education and self-management toolkit for people with knee osteoarthritis.

作者信息

Goff Anthony J, De Oliveira Silva Danilo, Ezzat Allison M, Crossley Kay M, Pazzinatto Marcella F, Barton Christian J

机构信息

La Trobe Sport and Exercise Medicine Research Centre, School of Allied Health, Human Services and Sport, La Trobe University, Bundoora, Australia.

Health and Social Sciences, Singapore Institute of Technology, Singapore.

出版信息

Digit Health. 2023 Mar 28;9:20552076231163810. doi: 10.1177/20552076231163810. eCollection 2023 Jan-Dec.

Abstract

OBJECTIVE

Describe the co-design process and learnings related to developing the web-based Translating Research Evidence and Knowledge (TREK) 'My Knee' education and self-management toolkit for people with knee osteoarthritis.

CO-DESIGN PROCESS: Stage (i): Understand and define; systematically reviewed education interventions in published trials; appraised web-based information about knee osteoarthritis; and used concept mapping to identify education priorities of people with knee osteoarthritis and physiotherapists. Stage (ii): Prototype; created a theory-, guideline- and evidence-informed toolkit. Stage (iii): Test and iterate; completed three co-design workshops with end-users (i.e., people with knee osteoarthritis and health professionals); plus an expert review.

RESULTS

The toolkit is available at myknee.trekeducation.org. Stage (i) identified the need for more accurate and co-designed resources to address broad education needs generated during concept mapping, including guidance on surgery, dispelling common misconceptions and facilitating engagement with exercise therapy and weight management. A theory- and research-informed prototype was created in Stage (ii) to address broad learning and education needs. Stage (iii) co-design workshops (=15 people with osteoarthritis and =9 health professionals) informed further content creation and refinement, alongside improvements to optimise usability. Expert opinion review (=8) further refined accuracy and usability.

CONCLUSIONS

The novel co-design methodology employed to create the TREK 'My Knee' toolkit facilitated the alignment of the content and usability to meet the broad education needs of people with knee osteoarthritis and health professionals. This toolkit aims to improve and facilitate engagement with guideline-recommended first-line care for people with knee osteoarthritis. Future work will determine its effectiveness in improving clinical outcomes in this population.

摘要

目的

描述为膝骨关节炎患者开发基于网络的“翻译研究证据与知识(TREK)‘我的膝盖’”教育与自我管理工具包的协同设计过程及经验教训。

协同设计过程

阶段(i):理解与定义;系统回顾已发表试验中的教育干预措施;评估有关膝骨关节炎的网络信息;并使用概念图确定膝骨关节炎患者和物理治疗师的教育重点。阶段(ii):原型制作;创建一个基于理论、指南和证据的工具包。阶段(iii):测试与迭代;与最终用户(即膝骨关节炎患者和健康专业人员)完成了三次协同设计研讨会;外加一次专家评审。

结果

该工具包可在myknee.trekeducation.org获取。阶段(i)确定需要更准确且经过协同设计的资源,以满足概念图绘制过程中产生的广泛教育需求,包括手术指导、消除常见误解以及促进参与运动疗法和体重管理。在阶段(ii)创建了一个基于理论和研究的原型,以满足广泛的学习和教育需求。阶段(iii)的协同设计研讨会(15名骨关节炎患者和9名健康专业人员)为进一步的内容创建和完善提供了信息,同时对可用性进行了改进。专家意见评审(8人)进一步提高了准确性和可用性。

结论

用于创建TREK“我的膝盖”工具包的新颖协同设计方法有助于使内容和可用性保持一致,以满足膝骨关节炎患者和健康专业人员的广泛教育需求。该工具包旨在改善并促进膝骨关节炎患者参与指南推荐的一线护理。未来的工作将确定其在改善该人群临床结局方面的有效性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ba78/10052584/1c8ae078b513/10.1177_20552076231163810-fig1.jpg

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